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Policy Priorities

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Many policy issues face the bleeding disorders community. HFA is a community-based grassroots organization focused on families. We support the community by providing information and tools to participate in monitoring, advocating, and supporting federal and state public policies that impact the lives of people living with bleeding disorders.

Access and Affordability

HFA works to ensure access to high quality care and treatments that are accessible and affordable to all people living with bleeding disorders in the United States.

  • Access to Products/Treatments
  • Access to Specialists
  • Access to Co-Morbidity Treatments

Safe Therapies

HFA works to ensure pharmaceutical manufacturing accountability and government oversight of the safety of bleeding disorder therapies.

  • Blood Supply Safety
  • Product Safety

Data Collection

HFA seeks to improve the process of valid data collection and ensure data is used to improve patient care and health outcomes.

  • Informed Consent
  • Privacy
  • Control of Data
  • Disclosure

 

 

Assisting and Advocating for the Bleeding Disorders Community