Page 3 - HFA Annual Report 2015

About HFA

emophilia Federation of America (HFA) formed in 1994 as a place of
Heducation and support for bleeding disorders families. HFA came to be 400,000+
in a time of confusion in the community as HIV and hepatitis had run rampant Reached via HFA’s social media
in the blood supply. During this period, many in the hemophilia community campaign for Hemophilia
felt they were not getting the answers they needed to explain how this tragedy Awareness Month
could have occurred. HFA began as a grassroots, community-led organization
dedicated to serving patients and unifying their voices in advocacy. 26,000+

Today, HFA is a premier national organization which continues to serve as Downloads of HFA’s Get in Gear
a trusted voice of the bleeding disorders community. As such, we assist and Fitness mobile app
advocate for patients and their families and remain dedicated to serving as
the voice for the needs of the bleeding disorders community. Through our 14,000+
programs, services, and outreach, we provide support and information to Community members receive
patients and their families so they can become stronger, more resilient Dateline Federation, HFA’s
advocates continuously improving their quality of life and health outcomes. quarterly publication
As we look forward, we plan to carry on this mission, expanding our programs 3,000+
at the local level, increasing education through our digital and print media
presence, and offering an innovative initiative through our new research unit, Men, women and children
with programming that is community centered, community focused, and attended HFA educational
community driven. sessions at local member
organizations

1,800+
“ TO ME, HFA MEANS FAMILY. I’m beyond grateful Men and women enrolled
”
to have such a strong network of support.
across programs
“ They say blood is thicker than water, and I believe that 750+
is what ties this community together. Knowing that others
are going through the same issues helps bind me to the Downloads of HFA’s Blood
Sisterhood mobile app
bleeding disorders community. I was off-balance after
my vWD diagnosis. After meeting others in the community, 200+
” member organization meetings
I found my balance; I was grounded. HFA program sessions at our