Page 5 - HFA Annual Report 2015

Treatment options vary depending on diagnosis;
most patients have to take intravenous injections
to replace the missing clotting protein their
body lacks. It costs an average of
$250,000

per year to treat hemophilia.

In 1973, the Hemophilia Act was passed
to form a nationwide network of federally
funded Hemophilia Treatment Centers to
provide comprehensive care and medical
experts for bleeding disorders patients.

30% Bleeding disorders are inherited

genetic conditions. However, 30%
of Hemophilia A patients will develop of new hemophilia diagnoses
an inhibitor, or antibodies, to treatment. happen with no family history.
1-2% of Hemophilia B patients will develop
inhibitors. A 2014 CDC study found that anyone Women who carry the hemophilia
with hemophilia can form an inhibitor and that all gene have a 50% chance of passing
patients should be tested yearly.
it along to all of their offspring.
Women can and do have bleeding
disorders, including hemophilia.
In the 1980s many members of the bleeding
disorders community
contracted HIV/AIDS
and/or Hepatitis C
from tainted blood In 1990, the Patient Notification
products. Tragically System (PNS) was created to provide a fast,
many of those free, and confidential program alerting patients
infected have with bleeding disorders of a withdrawal or
since died. recall of therapy products or ancillary supplies.