Announcing HFA’s TEACH Immersion in Spanish & English: Fall 2017

HFA is excited to announce a new event for 2017- TEACH Immersion (Together we Empower, Advocate, and Collaborate for Hemophilia and other Bleeding Disorders). TEACH will offer 24 men, women, moms, and dads from the bleeding disorders community, for three days of educational programming and advocacy training in Washington, DC. This training is designed to educate participants about the history of bleeding disorders and advocacy efforts, the legislative process, current policies affecting the bleeding disorders community, and tools to be a better advocate. Our goal is to create strong, well-informed, self-advocates for the bleeding disorders community. We hope you will be able to take what you have learned and apply it in your local community.

HFA is hosting two TEACH Immersions, including one led in English October 21st-24th, 2017 and one led in Spanish, November 4th-7th, 2017.

Tentative Program Schedule and Highlights:

Saturday, October 21, 2017
4:00 PM Community Arrives
6:00 PM Dinner, followed by Rap Session/Team Building/Ice Breaker
8:30 PM Free Time
Sunday, October 22, 2017
Before group assembles, please have breakfast in hotel
9:00 AM Welcome & Introductions

Why are you here and what do you want to gain from your time here?

9:30 AM History board presentation/History of advocacy
HFA Programming Overview
10:30 AM Break
11:00 AM Advocacy 101/The Importance of Advocacy
12:00 AM Lunch
1:00 PM Educational Programming- Breakout session for men and women
2:00 PM Pain Management/Self-advocacy with providers
3:00 PM Research 101: Informed consent and clinical trials
4:00 PM Break
6:00 PM Group dinner, followed by free time
Monday, October 23, 2017
Before group assembles, please have breakfast in hotel
9:00 AM Policy Update/Insurance
10:00 AM How to Talk to Your Legislator/Role Playing
11:00 AM Break
11:15 AM Advocacy and Social Media
12:15 PM Lunch
1:15 PM Hill Meetings and Capital Tour
4:30 PM Break
6:00 PM Dinner and debriefing about Hill visits, followed by free time
Tuesday, October 24, 2017
Before group assembles, please have breakfast in hotel
8:30 AM Choice of walking tour or other wellness activity
9:30 AM Retrieve bags and head to the office
10:15 AM Self-Care- Breakout session for men and women
11:30 AM Final Rap Session, event wrap up, and evaluations, followed by focus groups
12:00 PM Lunch in the office
1:00 PM Community Departs

Applications for this program are closed at this time.

HFA’s TEACH Immersion is Supported by: Accredo, Bayer, CSL Behring, CVS Specialty, Genentech, Novo Nordisk, and Shire

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