YA_Summit_PhotoSince 2014, HFA has offered the Young Adults program, including education and social support to young adults living with bleeding disorders. HFA is excited to announce a new program for people 18 to 30 years old with bleeding disorders and other chronic disorders—the Young Adult Advocacy Summit.

This national event will take place Saturday, Oct. 20 through Tuesday, Oct. 23, 2018, at HFA’s National Headquarters in Washington, D.C. HFA will bring together young adults from multiple patient communities, including bleeding disorders, for the three-day advocacy summit. Participants will develop advocacy, coalition building, and leadership skills through interactive training with experts in policy, advocacy, and communications.

Activities will include:

  • Comprehensive advocacy training on how larger policy issues affect the patient community-at-large
  • Intensive communications training about how the story of the bleeding disorders community fits in the broader patient narrative
  • Coalition building training Federal and state advocacy training
  • Learning from other young adults with chronic disorders about the challenges they face every day
  • Building networks across multiple patient advocacy groups to foster activities at a local level
  • Congressional meetings on Capitol Hill to practice skills
  • And much more!

Want to attend?

Registration Opens June 11. Please check back for registration information. 

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Registrants are required to complete a short application form for HFA to understand the interest in the Summit, as well as to collect important logistical and health information.

For more information, contact Sarah Shinkman, Advocacy and Outreach Manager:, or (202) 675-6984.


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