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Below are lists of posters and publications HFA Research have participated or presented in. The lists are routinely updated as new posters or publications presented.

CHOICE Posters and Publications:

Please email HFA Research (research@hemophiliafed.org) to obtain copies of the CHOICE posters.

2016:

Poster: Khachatryan A, Bron M, Cyhaniuk A, Owens W. “Characteristics and Treatment Patterns of von Willebrand Disease in the USA”. Poster presented at Academy of Managed Care Pharmacy Nexus, 6-8 October 2016; Baltimore, MD.

Poster: Owens, W.E., Oakley, M.A., Le, B.C., & Byams, V.R. “Public Health Surveillance of People Not Receiving Care at Federally-funded Hemophilia Treatment Centers: Treatment, Sources, and Utilization of Healthcare in the CHOICE Project”. Poster presented at American Society of Hematologist, 3-6 December 2016, San Diego, CA.

Publication: Owens, W.E., Oakley, M.A., Le, B.C., & Byams, V.R. (2016). Public health surveillance of people not receiving care at US federally-funded hemophilia treatment centers: Methods and demographics of the CHOICE project. Blood, 128 (22), 4761.

(Link: http://www.bloodjournal.org/content/128/22/4761 )

2017:

Poster: Morales, J., Owens, W.E., Cyhaniuk, A, Chan, E., Livingston, T., Smith, J., & Chupka, J. “Evaluating Patient Perspectives to Understand the Needs of People with Hemophilia (ExPAND) Project”. Poster presented at Hemostasis and Thrombosis Research Society, 6-8 April 2017; Scottsdale, AZ.

Poster: Owens, W.E., Xu, Y.P., Cyhaniuk, A., Chan, E., Ko, R.H., Solari, P.G., & Chupka, J. “Understanding Care & Utilization Perceptions of People with Hemophilia A with or without a Current Inhibitor”. Poster presented at International Society of Thrombosis and Hemostasis, 8-13 July 2017; Berlin Germany.

Collaborative Research Posters and Publications:

2016:

Poster: Guelher C; Recht M; Frey MJ; Sidonio R; Rice M; Owens W, Holot N; Cooper DL. “Management of US Boys and Girls with Hemophilia B: Caregiver Insights from the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study”. Poster presented at World Federation of Hemophilia, 24-28 July 2016; Orlando, FL.

Poster: Buckner T, Witkop M, Sidonio R, Kessler CM, Clark D, Owens W, Frick N, Iyer NN, Cooper DL. “Psychosocial impact of mild to severe hemophilia B on affected adults and children: methods and demographics of the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study”. Poster presented at International Society of Thrombosis and Hemostasis, 24-28 July 2016; Orlando, FL.

2017:

Publication: Buckner, T.W., Witkop, M., Guelcher, C., Frey, M.J., Hunter, S., Peltier, S., Recht, M, Walsh, C., Kessler, C.M., Owens, W., Clark, D.B., Frick, N., Rice, M., Iyer, N.N., Holot, N., Cooper, D.L., & Sodonio Jr., R.  Management of US Men, Women and Children with Hemophilia and Methods and Demographics of the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study. European Journal of Haematology. Vol. 98, S86. April 2017, 5-17.

(Link: http://onlinelibrary.wiley.com/doi/10.1111/ejh.12854/abstract )


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