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Pain is a serious medical concern in America.  For those with a bleeding disorder, pain as a result of a bleeding episode can result in acute and/or chronic pain issues.  This toolkit provides resources about many pain related issues in the form of:

  • presentations (recorded webinars, videos)
  • downloads (articles, documents)
  • links to other resources

If you or a loved one need help, the Substance Abuse and Mental Health Administration’s (SAMHSA) National Helpline  is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental health and/or substance use disorders.

 Note: Inclusion of resources by a third party site or organization do not constitute an endorsement by HFA, it’s Board, volunteers or staff.

PRESENTATIONS

 Screen Shot 2017-08-31 at 1.20.41 PM Webinar: Pain Management & Opioid Dependency: A pain management doctor and a psychiatrist address solutions to pain management as well as the growing concern of opioid use across the country. In addition two personal stories from members of the bleeding disorders community shed light on what living with pain and dependency.
youngadult_painhangout HFA Young Adults Google Hangout – Creative Strategies for Coping with Pain: In this interactive forum four young adults in the bleeding disorders community shared how they have managed their pain by using therapeutic and non-pharmacological ways via art, comedy, cooking, and other physical activities/wellness practices.

 

DOWNLOADS

HFA_dateline Dateline Federation: Pain Management and Opioid Addiction: This article from HFA’s quarterly magazine offers a Q & A with a doctor specializing in pain management and a pharmacist.
Hemaware_IMAGE National Hemophilia Foundation, Hemaware Pain Management:  The National Hemophilia Foundation has created combined a number of resources and articles to address pain management for the bleeding disorders community.
CDC-logo-03.12.15-low-res Center for Disease Control (CDC): These resources from the Centers for Disease Control and Prevention addresses prescription opioid use and communication between patient and provider.

Arthritis Foundation_image Arthritis FoundationLeading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections.

  • Arthritis Pain Management:  This comprehensive list of resources addresses a plethora of concerns related to pain associated with arthritis.
  • “Treating Pain with Medical Marijuana”:  This article from the Arthritis Foundation addresses the use of medical marijuana for arthritis and it’s potential benefits and cautions.
    *HFA strongly encourages patients and caregivers to consult with their healthcare provider and follow all appropriate laws and regulations regarding medical marijuana in the state in which you reside.

 

LINKS TO OTHER RESOURCES

paintoolkitdotorg_image PainToolkit.org:  The Pain Toolkit concept originated back in 2002 when Pete Moore was writing a self-management article for pain health care professionals in Europe.
American Academy of Pain Medicine_Image The Academy of Pain Medicine – Patient CenterAAPM members represent a variety of medical specialties that combine their focus on the diagnosis, treatment and management of pain. Here you can find links on patient education, facts on pain, and opioid safety for patients.

 

Managing Pain Before It Manages You Managing Pain Before it Manages You by Margaret Caudill: Managing Pain Before It Manages You offers just that–a program to help you reduce your pain and learn coping skills to get your life back. Developed over the author’s many years of working with chronic pain sufferers, this program has been proven effective. Program participants report that they have been able to take control of their pain and cut their doctor visits by more than one third! Straightforward and compassionate, this hands-on guide provides detailed information plus step-by-step techniques, activities, and worksheets (perforated for easy removal and photocopying).

 


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