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FDA Approves Revised Wilate Product Labeling For Surgery

Note: This is an edited form of a press release from Octapharma. To read the original release in its entirety, click here. Octapharma USA announced on August 13, 2015 that the U.S. Food and Drug Administration (FDA) has approved revised product labeling for WILATE® [von Willebrand Factor/Coagulation Factor VIII Complex (Human)] to include prevention of excessive […]

Emily and Logan_Moms Blog

Infusing Love: Factoring in the Freak Out

It is a common refrain to hear medical professionals comment on how well Logan does with his infusions. This is usually echoed in a, “He is such a champ,” or “How did you get to be so brave,” or the sadder version, “I wish my older patients were this good.” I am proud of Logan; […]

Dakota_4

Living with Hemophilia: A Young Adult Perspective

The transition to adulthood is an exciting time for any young adult, and can include living on their own for the first time, beginning a job, or starting a college/higher education experience. However, this also means young adults must learn quickly how to juggle the inevitable increase of personal responsibility. Dakota, age 20, is a PharmD […]

thomas_back_to_school_momsblog

Infusing Love: An A+ for Educating the Educator

Like all parents, I spend a few hours each August filling out back to school paperwork. It’s a tedious task. Once I finish all the required forms: emergency contact, acceptable technology use, and parent-teacher organization forms, I begin tackling the hemophilia forms. I update Thomas’s Individual Health Plan (IHP), and his “My Bleeding Disorder” document […]

chicken skillet

FitFactor: Basil, Tomato & Chicken Skillet

Looking for a quick, easy meal that keeps your healthy eating on track and helps use up some of the terrific produce you have harvested from your garden?  Look no further.  This recipe from Better Homes and Gardens cooks up in one pot and is packed full of fresh veggies helping to provide the vitamins […]

kari_bike_daughter_MomsBlog

Infusing Love: Her Own Protector

The first few years after Scarlett got diagnosed with a Platelet Storage Pool Disorder (PSPD), I was sure she was never going to live a normal life. Being told your 2-year-old has a life threatening condition and that you would have to keep her safe and free from injuries, proved to be harder than I […]

Industry News

New Data Supports Safety & Efficacy Claims of ALPROLIX

Note: This is an edited form of a press release from Biogen. To read the original release in its entirety, click here.  New clinical data support the long-term safety and efficacy of ALPROLIX® [Coagulation Factor IX (Recombinant), Fc Fusion Protein] in people with severe hemophilia B treated for up to two years, Biogen announced on […]

camping_infusion_momblog

Infusing Love: It Takes A Village

My husband, Alan, and I often get asked, “How did you raise a child with hemophilia who is attempting to climb the highest mountain on every continent?”  Most of the time we shake our heads and answer, “We have no idea.” Alan and I have two sons.  Our oldest, Andy, does not have hemophilia, and […]

Industry News

New Data Supports Safety & Efficacy of ELOCTATE

Note: This is an edited version of a press release from Biogen. To read the original release, click here. _____________________________________ Newly published clinical data demonstrate that people on extended-interval prophylaxis regimens with ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] experienced low bleeding rates, Biogen and Swedish Orphan Biovitrum AB (Sobi) announced on Monday, August 10, […]

Kelly_hemophilia mom

Infusing Love: Lessons Learned

Micah will be 14 years old in just a couple of months. He has severe hemophilia A, no inhibitors, and has been on prophylaxis since he was just over a year and a half old. So, for roughly twelve years, he has been on a very strict prophylaxis schedule dosing three or four times a […]

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