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Stanford University: New Form of Gene Therapy Could Cure Hemophilia in Mice

[glossary_exclude] A technique developed by Stanford researchers could provide a safer, longer-lasting method of replacing faulty, disease-causing genes with working copies. The ability to pop a working copy of a faulty gene into a patient’s genome is a tantalizing goal for many clinicians treating genetic diseases. Now, researchers at the Stanford University School of Medicine […]

cazandra_moms blog

Infusing Love: Hope is More Than a Four Letter Word

“Hope is important because it can make the present moment most difficult to bear.  If we believe that tomorrow will be better, we can bear a hardship today.”  -Thich Nhat Hanh I have never been a big fan of awareness bracelets  — the kind that are made of rubber that have sayings and logos promoting […]

Vaughn_Mens Health

Mens Health Magazine: Vaughn Ripley

[glossary_exclude]Earlier this year we encouraged the bleeding disorders community to vote for Vaughn Ripley, fitness guru living with hemophilia and HIV, during a Men’s Health cover contest. Due to your support, Vaughn received nearly 30,000 votes, earning him the below article in the November edition of the magazine! This article helps to bring awareness and education about […]

medical_news

FDA Approves New Treatment for Rare Form of Hemophilia

On Friday, October 24, 2014, the U.S. Food and Drug Administration approved Obizur [Antihemophilic Factor (Recombinant), Porcine Sequence] for the treatment of bleeding episodes in adults with acquired hemophilia A (acquired Factor VIII [FVIII] deficiency). Acquired hemophilia A is a rare, but potentially life threatening, bleeding disorder caused by the development of antibodies (immune system […]

Destinee_MomsBlog

Infusing Love: A Place of Comfort

It’s that glorious time of year when pumpkin fever has taken over and everywhere you look is pumpkin this and pumpkin that.  Local farmers’ markets are overflowing with a fall harvest of crisp apples and colorful displays of squash and gourds.  Overindulging on warm apple cider donuts is accepted as a guilty pleasure, marking the […]

Sugar

How Sugar and Sweeteners Affect Your Health

Did you know that the average American adult eats approximately 22 teaspoons of added sugar in their diet each day? The food we put into our bodies has a direct impact on how we look, feel, and on our health. For individuals with hemophilia or other bleeding disorders, eating healthy and maintaining a proper weight is especially important because it […]

Kari_MomsBlog

Infusing Love: Taking Care of the Patient & the Caregiver

I don’t think I’ll ever forget the day I got the phone call — the one I had been dreading since my daughter was diagnosed with Platelet Storage Pool Disorder (PSPD). It was 10:30 AM on a Thursday. I was singing to the preschoolers where I work when my colleague brought me the phone. She had that […]

Industry News

PPTA: Ebola Virus and Plasma Protein Therapies

The recent outbreak of Ebola virus has caused great concern among many people. We read stories about isolation, experimental therapies and many deaths. It is understandable that this raises questions for persons who are more vulnerable to infections such as persons with immunedeficencies. We have seen questions and concerns expressed by various persons and would […]

Dear Addy Banner

Dear Addy: Privacy Protection

Dear Addy, I rarely attend bleeding disorder related events because I want to protect my privacy. When I do attend it seems like every time I turn around people try to get me to complete a survey. Why is that? How can I protect my privacy? ~Under the Radar _______________________ Dear UR, Some companies, organizations, […]

Plasma_IPAW Week

HFA Recognizes International Plasma Awareness Week

HFA joins Plasma Protein Therapeutic Association (PPTA) and its other Member Companies sponsor the second International Plasma Awareness Week (IPAW) to be celebrated globally October 12-18, 2014. This event is held annually and is designed to: Raise global awareness about source plasma collection Recognize the contributions of plasma donors to saving and improving lives Increase understanding […]

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