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FDA Approves Baxter’s RIXUBIS for Treatment of Children with Hemophilia B

Baxter International Inc. announced on Monday, September 15 that the United States Food and Drug Administration (FDA) has approved RIXUBIS [Coagulation Factor IX (Recombinant)] for routine prophylactic treatment, control and prevention of bleeding episodes, and perioperative management in children with hemophilia B. RIXUBIS was the first recombinant factor IX (rFIX) approved for routine prophylaxis and […]


Important Information About Respiratory Illness EV-D68

Cooler weather and back to school triggers the start of virus season.  More time spent indoors in close proximity to those that we work, play, learn, and live with provides a great opportunity for viruses to work their way from one person to the next.  While we all try to stay healthy, it is especially important […]

Helping Hands Infographic

Helping Hands: Durable Medical Items

[glossary_exclude] “Thank you for your financial assistance so that we were able to add a chair lift. Prior to installation, I had numerous falls which were injuring to my knees causing decreased stability and mobility. Since the chair lift installation, I have not had a fall and my knees are strengthening and I have more […]

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Baxter Announces Name Change to Baxalta

Baxter International Inc. announced on Wednesday, September 10, 2014 that Baxalta Incorporated will be the name of the new, publicly traded biopharmaceutical company that is expected to launch in mid-2015. Upon completion of the separation, Baxalta plans to trade on the New York Stock Exchange (NYSE) under the symbol BXLT. Baxter International will continue trading […]

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Infusing Love: Helping Others, One Finger at a Time

Shortly after Thomas was born, the National Hemophilia Foundation (NHF) Annual Meeting was being held in Salt Lake City.  My husband, Nathan, and I were eager to absorb any and all information about hemophilia, so we made the decision to pack up our 2-year-old daughter, Nora, and 3 months old Thomas, and take a road […]

Helping Hands InfoGraphic

A Critical Safety Net from the Past to the Present

[glossary_exclude]  Helping Hands is a unique financial assistance program that assists individuals and families within the bleeding disorders community with basic living  expenses. It was designed to be a rapid, non-invasive, temporary resource for emergency situations and provide a foundation for future financial stability. In 1997, HFA started the Helping Hands program when it noticed there was an unmet need […]

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Infusing Love: Grandparents Know Best

Today is a day for celebrating grandparents, our experienced mentors in this journey of parenting.  Our Infusing Love mom bloggers share what their parents or grandparents have meant to them and how they’ve offered support when times get tough living with a bleeding disorder.  ________________________ Growing up, celebrating Grandparents Day was just as big as […]

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Healthy Back To School Snacks

[glossary_exclude] When considering snacks for your kids, the end of summer doesn’t have to signal the end of healthy eating.  Although it is a natural tendency to grab whatever is convenient, prepackaged foods and snacks are usually not the best choice for healthy, growing bodies. It is especially important to eat healthy if you have […]

Medical research

Researchers Prevent Inhibitors in Mice with Hemophilia

New and exciting news recently published in the journal Blood about a possible method to prevent and treat inhibitors. A University of Pennsylvania researcher has successfully prevented inhibitors from forming in mice with hemophilia by using a plant-based drug to teach the immune system to tolerate clotting factors. Read this University of Pennsylvania  press release in its entirety. ____________________________ […]


Infusing Love: Striking a Balance

One of the positive things about hemophilia is the different sports and hobbies it has reintroduced into our family life. When Micah was three, we attended our first hemophilia fundraiser.  It was at a bowling alley.  He absolutely loved it and thought it was funny when the pins fell down and everyone clapped.  He loved […]

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