Receive Our Newsletter

Infusing Love: It’s a Family Affair

I grew up knowing the word hemophilia, although as a child, I could not have told you what it exactly meant. I knew that some of the boys in my family bled a lot, but nothing about the different severities or types.  I knew that my Granddaddy was a bleeder and that he died when […]

Dear Addy

Dear Addy: Choice in Health Care

Dear Addy, I am frustrated because my insurance company has mandated that its members use a single pharmacy provider. What can be done to stop this denial of choice? Signed, Pharmacy Frustrated

Community in Action: Beards for Bleeders

John Bruno is truly a Dad in Action. HFA recently asked John a few questions about his involvement in the community. John sets a great example for all of those affected by a bleeding disorder. “I’m just looking for a way to do my part in supporting this great community.” Join John in his efforts […]

Blood Brotherhood_Douglas

Putting a Face on Hemophilia and HIV

My name is Douglas Rice and I am one among a generation of 10,000 hemophiliacs who contracted HIV from contaminated blood products. It remains difficult for a lot of people in my situation to talk about HIV, and by association, hemophilia. These days, it’s possible to live a pretty normal life with HIV, but for some […]

Debbie_Inhibitors

An Inhibitor Mom Shares Her Story With the FDA

On Monday, September 22, hundreds of members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA. HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out […]

GFG-2014-NH

Gears for Good: Your Chance to Make a Difference!

There is still time to make a difference! The Gears for Good bike ride is this weekend, September 26-28th, 2014. FitFactor encourages physical activity in individuals with bleeding disorders.  HFA provides an opportunity for those who are physically active to benefit the bleeding disorders community in our annual charity bike ride-Gears for Good.  You don’t […]

Lewis and Maria_Wrapup

HFA Policy & Advocacy Intern Synopsis

Earlier this summer we welcomed our summer policy & advocacy interns to our DC office. Lewis and Maria are part of the bleeding disorders community and were chosen to participate in a 8 week internship because of their leadership qualities and interest in the field of policy and advocacy. Throughout the summer, Lewis and Maria […]

Industry News

Biogen and MicroHealth Launch Digital Health App

Micro8 is a secure application that may help the Hemophilia A community manage infusion schedules and track bleeding episodes, and may help clinicians stay updated on their patients’ care. Micro8 provides mobile app, text- messaging and web-based tracking options for individuals and caregivers, who have historically logged infusions and bleeding episodes on paper or have […]

Tracy_MomsBlog

Infusing Love: Outside the Comfort Zone

[glossary_exclude] This week is the 4th annual HFA Gears for Good bike ride, which means it’s also been one year since I did my first Gears for Good ride in DC.  As I look back on those three days, I’m flooded with many different emotions. I am not a cyclist.  When the ride was about […]

FDA_Logo

FDA Hosts Patient-Focused Meeting

On Monday, September 22, hundreds of members of the bleeding disorders community came out to share their experiences with bleeding disorders treatment with the FDA.* HFA worked with partners like NORD, PPTA, and NHF to ensure that our community was effectively represented. Patients and advocates of every age, every background, and with several different conditions came out […]

Page 1 of 9412345678910NextLast »

Assisting and Advocating for the Bleeding Disorders Community