Receive Our Newsletter

Grifols Donates Coagulation Medicines to World Federation of Hemophilia

Grifols announced that it will donate up to 20 million units of coagulation therapies in each of the next three (3) years to the World Federation of Hemophilia (WFH). Grifols has been a proud supporter of the WFH and its noble efforts for nearly a decade – and this unprecedented product donation represents its largest […]

Reuters: Biogen Hemophilia Drug Prices On Par With Older Therapies

Reuters – Biogen Idec Inc is pricing its newly approved long-acting hemophilia drug, Alprolix, to cost U.S. patients, and insurers, about the same per year as older, less convenient therapies whose price can reach about $300,000 annually. The move could pressure rivals such as Pfizer Inc to lower prices for existing hemophilia treatments, which provide […]

FDA: Hemophilia Treatments Have Come a Long Way

Gone are the days when a hemophilia diagnosis meant you could not live a normal life. Now more treatments are approved by the Food and Drug Administration (FDA), and people with the condition can better manage bleeding. That’s good news as thousands observe World Hemophilia Day on April 17, 2014. Hemophilia is a rare bleeding dis- […]

grilled pineapple pico de gallo

Grilled Pineapple Pico de Gallo with Plantain Chips

If you had the opportunity to join us at HFA’s Symposium 2014 in Tampa Florida, we hope you stopped by the FitFactor Wellness Lounge to say hello and take advantage of the opportunities to learn more about a variety of wellness practices.  One of the features at the Wellness Lounge was a healthy cooking demonstration given […]

World Hemophilia Day2

Thousands of Families Observe World Hemophilia Day

Today (April 17th),  tens of thousands of families across our nation and around the world will recognize World Hemophilia Day to raise awareness of bleeding disorders. “World Hemophilia Day brings public awareness about bleeding disorders and encourages the development of improved treatment,” said Kimberly Haugstad, Executive Director of Hemophilia Federation of America (HFA). “Worldwide, 1 in 1,000 […]

Moms Blog_Maryann

Infusing Love: The Union Behind My Reunion

The thing about kids is that they grow up  they move on and make their own choices. That’s what Max did – he moved on and made his own choices. That’s not to say he has always made GOOD choices. But what would the point of all the years of teaching him to be independent […]

Bloomberg News: Merck Data a Potent Rival to Gilead’s Hepatitis C Pill

By: Drew Armstrong Merck & Co. (MRK)’s experimental hepatitis C pill produced clinical trial results positioning the drug as a strong competitor to a potential blockbuster therapy from Gilead Sciences Inc. (GILD) Merck’s two-drug combination once-a-day pill stopped the virus in 98 percent of newly treated patients with few major side effects, according to a […]

FF Karate Pic 5 Anthony P

The Benefits of Martial Arts

When considering a physical activity for themselves or their family members with a bleeding disorder, many people overlook the possibility of martial arts. Martial arts can be defined as any of the traditional forms of Oriental self-defense or combat that utilize physical skill and coordination without weapons, such as karate, aikido, judo, or Kung Fu, […]

hug o war

Infusing Love: Hug O’ War

I grew up an only child raised by my grandparents, so I never had the sibling experience of arguing and fighting with another child in the house.  As a mom, that battle between siblings and the idea of sibling rivalry has been a foreign concept to me.  Sure, there were periods of my life when […]

A Carrier Seen Through Her Father’s Eyes

Having hemophilia is an interesting challenge for an individual. Throughout my life, I have tried to learn as much as I could about this condition and find a way to overcome the adversities it often presents. I thought I had this thing down to a science, but I had no idea what to expect as […]

Page 1 of 8112345678910NextLast »

Assisting and Advocating for the Bleeding Disorders Community