Receive Our Newsletter

Dear Addy

Dear Addy: Is It Safe To Get A Tattoo With Hemophilia?

  Dear Addy, I want to get a tattoo, but am worried that my hemophilia will complicate things. Is this safe? Signed, Un-Inked ________ Dear Un-Inked, This is a subject that you and your hematologist need to discuss. Here are some questions to ask your hematologist: Safety—Is it safe for someone with hemophilia to get […]

carl yoga

You’re Never Too Old

Let’s face it, we are all getting older.  People with hemophilia who have access to factor replacement therapy now have a normal life expectancy and are having to deal with the issues of aging.  One of the most important things we can do for ourselves is to stay physically active.  For individuals with hemophilia or […]

MaryAnn_Max

Infusing Love: Blessed to Have Treatment

I sometimes forget how fortunate we are to live in the United States. When Max was younger, we had all the typical issues a child with hemophilia has: excessive bruising, bloody noses, and joint bleeds. I struggled to maintain health insurance, and as he aged, I struggled with navigating his infusions. As we attended more […]

Industry News

CSL Behring Renews Pledge to World Federation of Hemophilia

  In recognition of World Hemophilia Day April 17, the World Federation of Hemophilia (WFH) and CSL Behring announced today that CSL Behring has once again committed to donating bleeding disorder protein therapy international units (IUs) to the WFH Global Alliance for Progress (GAP) Program and other WFH programs, as well as making significant financial […]

Infusing Love logo_square

Infusing Love: The Brother I Never Knew

I have always felt my brother’s presence in my life.  He was born in May of 1962.  There are no pictures of him or any stories about him.  He only lived for five days.  I was born, 6 years later, in October of 1968. I remember going to the cemetery to visit the family graves […]

medical_news

Gilead’s $1,000 HCV Pill Is Hard for States to Swallow

Note: This story was originally published by Joseph Walker, Wall Street Journal reporter, on April 8, 2015. To see the original post, click here. ____________________ A pricey pill made by Gilead Sciences Inc. caused Medicaid spending on hepatitis C treatments to soar last year, even as most states restricted access to the drug, leaving many low-income patients untreated. State […]

Ryan White_25th Anniversary

Remembering Ryan White 25 Years Later

25 years ago today, Ryan White died at the age of 18. During the 1980s, Ryan bravely became a national spokesperson and symbol of hope for the hemophilia and HIV/AIDS community after being expelled from middle school due to community fears that the virus would spread to other children. Today, his mother Jeanne continues to […]

Dear Addy Banner

Dear Addy: 340B Programs

Dear Addy, The specialty pharmacy that I have to use through my insurer doesn’t carry my preferred brand of factor so I have to go through the prior authorization process to get my factor. My hemophilia treatment center (HTC) does not have a 340B program but I know of another HTC that does and they […]

medical_news

Five New Developments in Hemophilia

This post first appeared on Vector, a blog of Boston Children’s Hospital an was written by Ellis Neufeld, MD, PhD, a hematologist at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center.   ________________________________________________ From new longer-acting drugs to promising gene therapy trials, much is changing in the treatment of hemophilia, the inherited bleeding disorder in which the blood does not clot. […]

Industry News

Kedrion Announces Safer Manufacture Process for Koate Antihemophilic Factor

Note: This is an edited version of a Kedrion press release. To read the full release, click here.  ____________________ Kedrion Biopharma proudly announced that Koate® Double Viral Inactivation (DVI) Antihemophilic Factor (human) is now being manufactured using a process that further enhances the safety and purity of that product. Koate-DVI is used in the treatment […]

Page 1 of 10512345678910NextLast »

Assisting and Advocating for the Bleeding Disorders Community