Receive Our Newsletter

carrie_advocates

Infusing Love: Taking a Stand

  Every day we advocate for our children and ourselves. Our advocacy ranges on a small scale such as requesting a drink refill when we need one at restaurant to advocating for our children on a larger scale when requesting a doctor to infuse your child before any sort of x-ray when in an emergency […]

oj_fit_factor-jpg

FitFactor: How Does Your List of Healthy Foods Compare with a Nutritionist’s?

Do you feel that your views of what’s healthy align with the views of the experts? The New York Times published an interesting article a few months ago about public perception of what is “healthy” and how these have changed over time. The study also highlighted what foods nutritionists believe to be the healthiest (and […]

Infusing Love: A Boy & His Dog

Thomas had a stuffed animal when he was little. “Dog*” went through a lot with us. He was a constant companion, friend and source of comfort. Dog stayed in the hospital, went to clinic visits and traveled with us. We would literally pack factor for an ER visit with one hand and grab Dog with […]

informed_consumer_dear_addy-jpg

Dear Addy: Formularies

Dear Addy, I keep hearing the terms formulary and preferred drug list. What do they mean and should I be worried if my current insurance plan has one? What about my friends that have Medicaid? Signed, Informed Consumer ____________________________________________________________________________________ Dear Consumer, A formulary is a list of prescriptions drugs that are covered by a particular […]

emily_painter_boy-jpg

Infusing Love: He Needed Me

I am exhausted. So very exhausted. I am pleading to myself that there isn’t something wrong; that the whimpers and small cries I hear as he sleeps aren’t there and that it is from sleep deprivation. I am drifting in and out of sleep on the baby glider that still graces his room even though […]

landon4-wm

Caregiver Heroes: William

In honor of National Caregiver Month, we’ll be featuring “Caregiver Heroes” throughout the month of November. While all in the bleeding disorders community are heroes in their own special ways, these folks are being given a special shout-out for the ways they take care of their loved ones and themselves. Meet William from Tennesse. William […]

Industry News

Octapharma Announces Two Hemophilia A Clinical Trials Utilizing Wilate

The following is excerpted from a press release from Octapharma USA. Read the press release in it’s entirety here.  Octapharma USA has announced that WILATE®, von Willebrand Factor/Coagulation Factor VIII Complex (Human) Lyophilized Powder for Solution for Intravenous Injection will be utilized for two important clinical trials for hemophilia A launching in December. Octapharma USA […]

Infusing Love logo_square

Infusing Love: Remembering John Reed

With the recent passing of John Reed, the hemophilia community lost a true champion. John was so many things to so many different people – husband, father, blood brother, friend. The list goes on and on, as does the list of adjectives one could use to describe John – caring, passionate, compassionate, smart, dedicated. I […]

first_time_dear_addy-jpg

Dear Addy: Open Enrollment for New Users

Dear Addy, I’m applying for health insurance for the first time this open enrollment period. With a bleeding disorder, what should I look for in an insurance plan? Signed, First-time Subscriber _____________________________________________________________________________________ Dear Subscriber, First, an Open Enrollment Period is the time during the year when health insurance companies or HMOs (health maintenance organizations) are required by law to […]

We Are Always Here For You

Dear Advocate: After yesterday’s election, there are many questions for the bleeding disorders community. While we don’t have all of the answers, we understand the concerns many have. No matter what your politics are, know that HFA is there for YOU — the bleeding disorders community. We offer you our reassurance that we will continue to […]

Page 1 of 13112345678910NextLast »

Assisting and Advocating for the Bleeding Disorders Community