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Infusing Love: A World of Thanks

I was at the craft store the other day looking for Thanksgiving dessert plates and napkins; instead I found Christmas decorations from corner to corner. I asked a sales associate where I could find the fall or Thanksgiving related décor. To my disappointment it had all been removed the day after Halloween. My quick retort […]

Dear Addy

Dear Addy: Inhibitors

Dear Addy, I’m taking my son in for his annual visit, and I saw that MASAC issued a statement about inhibitors. Should I have him checked for one? Signed, Learning All I Can Dear Learning, Inhibitors are antibodies that the immune system develops in response to a clotting factor product used to treat a person […]


Open Enrollment For 2016 Is Here

Though Thanksgiving has yet to arrive, it is time to start making your list and checking it twice. No, not that list; the list of the things you need to make sure your health insurance plan covers when your open enrollment period starts. An open enrollment period is the time when individuals can enroll themselves […]


Infusing Love: Put Mom First!

I have a confession: I am a better talker than doer! Last November I wrote about self-care: “Self-care should not only be what we teach our children with a bleeding disorder.  We have to practice self-care for ourselves.  Our children learn more from watching us anyway.  If they see us taking the time to care […]


Listening To The Needs Of Women

“Throughout the CHOICE Project we heard from numerous women about their lack of access to the diagnosis and care they need as patients with bleeding disorders. Many women explained that doctors told them women can’t have hemophilia, or a bleeding disorder, and otherwise how providers were dismissive of their symptoms and pain.” — Wendy Owens, […]

Industry News

FDA Approves Twice-Weekly Hemophilia A Treatment

Note: The following is an edited version of a press release originally published by Baxalta. The original release can be read here. Baxalta Incorporated announced on Monday, November 16, 2015, that the U.S. Food and Drug Administration (FDA) has approved ADYNOVATE [Antihemophilic Factor (Recombinant), PEGylated], an extended circulating half-life recombinant Factor VIII (rFVIII) treatment for hemophilia […]

Industry News

Results of Toddler Inhibitor Study (SIPPET) Announced

The American Society of Hemophilia (ASH) released information about their upcoming 57th ASH Annual Meeting, which will be held December 5-8, 2015 in Orlando, Florida. Included in the program information is a paper abstract about the SIPPET study (Survey of Inhibitors in Plasma-Product Exposed Toddlers.) A plenary session with further information will be presented at the […]

crock pot

Cooking Safely with Slow Cookers

The crisp fall air means its time to pull out the slow cooker and whip up those comfort foods that leave us feeling warm and toasty.  It is important to keep in mind healthy eating when reaching for the comfort food recipes which can often be high in fat and sodium. A healthy diet includes the […]


Infusing Love: With Gratitude

It’s said that everything happens for a reason. Someday you’ll look back on this and be thankful. You’ll be able to see what it’s taught you. When my daughter and I were first diagnosed with Platelet Storage Pool Disorder (PSPD), I had a hard time finding the good in anything amidst all the frightening doctor […]

Dear Addy_biosimilar

Dear Addy: Biosimilars

Dear Addy, I keep hearing about biosimilars. What are they, and how do they differ from generic drugs? Sincerely, Curious About Products Hi Curious, Thanks for your question. A biosimilar is a pharmaceutical drug that is made to have similar active properties as a biological drug that has already been licensed. Biologics are really important […]

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