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FDA Grants Orphan Status for New Inhibitor Treatment

Below is from a press release Apitope sent out on June 9, 2015. To read it in its entirety, click here. Apitope, the drug discovery and development company focused on disease-modifying treatments that reinstate immune tolerance, announced today that pre-clinical product candidate ATX-F8-117 has been granted Orphan Drug Status by the US Food and Drug […]

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Infusing Love: Making New Memories

There are many dates and events in our lives that we think of as markers: birthdays, anniversaries, graduations, and holidays. For some it’s buying their first car or even a home. Sometimes they are things like the death of a loved one or loss of a job. We have memorabilia such as pictures, diplomas, obituaries […]

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FitFactor: Deciphering Food Labels

[glossary_exclude] Maintaining a proper weight and good health is so important for people with bleeding disorders for some very good reasons: Better overall health Helps prevent and control disease Reduces stress and impact on joints Less factor is needed for individuals who are at an ideal weight Good eating habits play a big part in the […]

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Supreme Court Upholds ACA Subsidies

We’re pleased today to learn that the Supreme Court of the United States, in a 6-3 decision, upheld the subsidies provided under the Patient Protection and Affordable Care Act (ACA). These tax subsidies have allowed so many in our community to afford the care they need to treat their ‪bleeding disorders, and we are confident that these […]

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Infusing Love: Thankful for Hemophilia

As a parent of a child with hemophilia, it is quite often difficult to find something about hemophilia for which you are thankful. Let’s be honest, for all of us, at times, it can be difficult to sing the praises of hemophilia. Thankfully, there are also days that you realize the multitude of unexpected blessings. […]

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My Dad: As Seen By A Hemo Mom & Daughter

    I wish I could run on the beach with my Dad. This thought went through my mind as I watched a father and daughter on the beach a few weeks ago.  As I watched the dad and daughter run into the distance, I started to feel sad. I never saw my dad run.  […]

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Cycling 4,000 Miles for Hemophilia Awareness

Note: This story originally appeared on PRWeb. Barry Haarde is a participant in HFA’s annual Gears for Good ride from West Virginia to Washington, DC. Cyclist Barry Haarde is on a mission to raise awareness about hemophilia and encourage individuals to support needy hemophilic children through Save One Life, which supports more than 1,200 individuals with […]

HFA Champion Award Given to 4 Members of Congress

On June 17, 2015, we hosted our 2nd Annual Patient Fly-In in Washington, DC alongside an online Virtual Hill Day to gain support for bill HR 1600, The Patients’ Access to Treatment Act in the US House and Senate, and other issues like the ability for third-party non-profits to help make payments on behalf of patients, and improving access to skilled […]

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Infusing Love: Friends to the Rescue

We had a tough winter. We spent more time than ever before cuddled up in an ER room watching whatever Disney movie was on the in-hospital. Doctors and nurses would rush in and out. We ate fast food and hospital food.. We coped. Because, this is our life. This is our reality. I like this. […]

Dear Addy

Dear Addy: Out-Of-Pocket Costs

Dear Addy, So I saw the question you recently answered about what counts towards a deductible. You didn’t talk about what counts towards out-of-pocket costs. Does every penny I spend on healthcare count towards my out-of-pocket costs limit? Signed,  Pocket Picky  Dear Picky, No, not every penny you spend on healthcare will count towards your annual […]

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