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Blog_Emily_2016-05-04

Infusing Love: I Get To Decide

I have an incredibly sweet and endearing child. I have been told on more than one occasion by his teachers that he has a sense for other children’s feelings, he knows when children are hurting, and he makes an effort to console them. I would love to take full credit for Logan’s sweet personality, but […]

Colorado Dad Continues Advocacy Involvement

Nathan Wilkes has been advocating for his son, Thomas, who has hemophilia and an inhibitor for more than a decade. Nathan began his advocacy by simply writing an essay about his family’s struggle with lifetime caps which was sent to a limited number of contacts within state government and a few friends. He soon found […]

Industry News

Biogen Announces Intent to Spin off Its Hemophilia Business

Note: The below is an edited version of a press release from Biogen Inc. The original release can be read in its entirety here. Biogen Inc. announced on Tuesday, May 3, 2016 that it intends to spin off its hemophilia business as an independent, publicly traded company. The strategic goal of this transaction is to […]

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May is Hepatitis Awareness Month

In 2001, the Centers for Disease Control (CDC) and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral hepatitis. In the 1980s and 1990s, thousands of people with hemophilia contracted HIV and Hepatitis C (HCV) from the contaminated blood supply transmitted by clotting factorproducts. […]

Action Alert

Action Alert: Voluntary Withdrawal of IVIG Product

As part of HFA’s ongoing mission to assist and advocate for the bleeding disorders community, this action alert is being issued to keep you informed about blood safety. About This Withdrawal Due to increased reports of hypersensitivity reactions such as rashes or urticaria and/or wheezing, Octapharma USA Inc. has voluntarily withdrawn from the market one lot of […]

FAM_Blog_Graphic_Tracy_2016-04-27

Infusing Love: No Promises

What is the last thing you say to your child before they leave the house? Maybe it is “I love you.” “Be careful” is always toward the top of my list. Ideally, I’d like to hear “Yes ma’am,” or “I will” in response. Do I ever hear that?! No! Nick’s favorite response is “No promises.” […]

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CDC Releases New Recommendations for Opioid Prescriptions for Chronic Pain

Note: The following is an edited form of a press release from the Centers for Disease Control and Prevention (CDC). The original form of the release can be read here. To read more about pain issues in the hemophilia community, please visit these resources from HFA: Opioids, Addiction, & Bleeding Disorders Pain Toolkit Webinar: Ouch! […]

Hemophilia: Not an Excuse to Be a Couch Potato

By Michael Zolotnitsky, PT, DPT Growing up with hemophilia made waking up with bruises, joint pain, or the inability to bear weight on my ankles a normal occurrence. Time and time again, my mother had to drive me to the local hematology clinic to have factor infused. I did not feel like a normal child. I […]

Helping Hands: Housing Expenses

In 2015, HFA’s Helping Hands program assisted 295 households and distributed over $124,00 in direct aid to families in the bleeding disorders community! Of those 295 households helped in 2015 we assisted 90 families/individuals with their housing expenses. Read how one family has benefited from this vital program: I cannot thank Helping Hands enough for what they did for my family. […]

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Letter to FDA Commissioner Regarding Biosimiliar Safety & Approval Process

HFA is proud to be part of the Patients for Biologics Safety & Access (PBSA). PBSA is a coalition of 24 patient advocacy organizations dedicated to protecting patient access to safe and effective biologics. Together, this coalition represents millions of Americans who suffer from serious, life-threatening diseases that are difficult to diagnose and treat. As […]

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Assisting and Advocating for the Bleeding Disorders Community