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Samantha_InfusingLove

Infusing Love: Hemophilia Makes Me A Better Parent

When my newborn baby was put into the Neonatal Intensive Care Unit (NICU) for a week, I was hit by a powerful force of immense strength and love I didn’t know I had.   My husband and I already were blessed with our firstborn son who did not have any health concerns.  While we love both […]

Inhibitor_Stats

Journal of Blood Medicine: Inhibitor Challenges

Inhibitors are antibodies that the immune system develops because it sees the infused clotting factor as a foreign substance that needs to be destroyed. Antibodies are proteins that eat up the activated factor before it has time to stop the bleeding. Approximately 30% of people with severe Hemophilia A are affected by inhibitors at some […]

Industry News

Baxter Reports Success in Long-Acting Hemophilia Product

This article was originally published in Reuters on August 21, 2014. Click here to read it in its entirety. ______________________ Baxter International Inc said a more potent version of its flagship blood disorder drug Advate met the main goal in a late-stage study. The experimental drug, BAX 855, was being tested as a preventive therapy […]

Graphic FF

Kids are Not Getting Their Veggies

Last week the CDC reported that 9 in 10 kids, 2 to 18 years old, don’t eat enough vegetables. And, many of the veggies they do eat are fried, white potatoes. It is so important for growing bodies to get the essential nutrients they need and even more important in an individual with a bleeding […]

Mickey

Hemophilia is Only a Handicap if You Let it Be

Below is an excerpt from our one-of-a-kind Dads’ book, Dads in Action: Real Stories from the Bleeding Disorders Community. This book is free to all dads who sign up for our Dads in Action program. ___________________________________________________ I am 38 years old. I live with severe Hemophilia A, but I don’t suffer from it. I have […]

FDA Recall

Peanut & Almond Butter Recalled for Salmonella Risk

*This article was original posted by the Associated Press on August 20, 2014. Click HERE to read it in its entirety. Our FitFactor Team works hard to make sure the bleeding disorders community is informed with the latest FDA recalls and shares relevant information to keep you and your family healthy.  __________________________________________________________________ A unit of Hain […]

Lovee_MomsBlog

Infusing Love: Educating the Educators

Our Back to School toolkit was created for parents of children with a bleeding disorder. Check it out for examples of IHP, 504 & IEP plans, and a customizable PowerPoint presentation to help you advocate for your child: http://www.hemophiliafed.org/?p=17892 In a week my oldest son, Marques, will start middle school and I can’t help but to […]

Dear Addy Banner

Dear Addy: Back To School

Dear Addy, We moved to a new state for my job. What is the best way to explain my son’s hemophilia to the school? I am worried about how to handle teaching the school about his hemophilia. I want them to know how they can support and help him to prevent bleeds and I want […]

StuffedPeppersNAMINAMI

Peppers Stuffed with Tomatoes & Mozzarella Recipe

Uncertain about what to do with all of the wonderful, fresh finds you gathered from your garden or the local summer produce market?  Here is a healthy and delicious recipe that will help utilize your cherry tomatoes and peppers. A healthy diet includes the essential nutrients that help to reduce your risk of developing chronic diseases, such […]

Cazandra_Moms Blog

Infusing Love: Mama Warriors

Some things can be measured: flour for cookies, a yard of material, an evaluation at work, and the number of times a heart beats, but what about pain?  When your child is in the hospital and is in pain the clinicians will often ask “What number is your pain?” or “Which face is your pain?” […]

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Assisting and Advocating for the Bleeding Disorders Community