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FDA Accepts for Review CSL Behring’s Biologics License Application for New Recombinant Hemophilia A Treatment

Note: The below is an edited press release from CSL Behring. To read the full release, click here. CSL Behring announced that the U.S. Food and Drug Administration has accepted for review the company’s Biologics License Application (BLA) for its novel investigational recombinant factor VIII single-chain (rVIII-SingleChain) for the treatment of hemophilia A. In the […]

medical_news

FDA Clears Two New Oral Drugs for Hepatitis C

Note: This article originally appeared on Medscape. To read the FDA release on Daklinza (genotype 3), click here. For the FDA release regarding Technivie (genotype 4), click here. The US Food and Drug Administration (FDA) approved two new drugs today for hepatitis C (HCV), one for genotype 3 and the other for genotype 4. The first medication is […]

medical_news

A Gene-Sequence Swap Using CRISPR To Cure Hemophilia

Note: The following is taken from a press release from the Korean-based Institute for Basic Science. To read the original release, click here. Sufferers of hemophilia live in a perpetual state of stress and anxiety: their joints wear down prematurely and they have bleeding episodes that feel like they will never end. Their bodies lack […]

jen_moms Blog

Infusing Love: You Can Do Anything (With Guidance)

It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to keep them flexible and strong.  Physical activity also helps individuals to maintain a healthy weight, which keeps less stress off the joints, and has even proven to […]

Industry News

Baxalta Releases Findings of Potential Extended Half-Life Product

Note: This is an edited form of a press release from Baxalta, Inc., originally published on July 16, 2015. To read the full press release, click here. Baxalta Incorporated announced the publication of the complete data from the Phase II/III pivotal study and Phase I trial of BAX 855 in Blood, the journal of the […]

little chefs

FitFactor: Help Kids Start Cooking

One of the best ways to get kids to eat healthy is to start young and teach them how.  Make healthy eating a lifelong habit from the start.  Eating nutritious meals and snacks is so important to people with bleeding disorders.  A variety of vitamins and minerals help support strong muscles and bones, and eating a […]

brendan_college

Infusing Love: Mom Interrupted

I am finding myself in an interesting point in my life.  My oldest son is home for the summer and has finished up his first year of college. My youngest son is about to start his senior year of high school. So I’ve successfully launched one bird out of the nest and hope I can […]

Cazandra_MomsBlog

Infusing Love: Towards the Light or the Shadow?

When you are in the middle of what seems like a never-ending bleed, you function in the moment, hoping that things get better soon. Living with a chronic condition has helped my family learn to look at things in a positive light, and I like to think it has helped me become someone who sees […]

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HFA Patient Fly-In: Through Our Interns’ Eyes

Earlier this summer, we introduced you to Adam and Matthew, our summer Policy Interns. These two have been busy all over DC, attending Congressional hearings, Executive briefings, and much more. Recently, they got to experience first-hand the planning and execution of our 2nd Annual Patient Fly-In. Below is their take on the week, and a bonus […]

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FDA Grants Orphan Status for New Inhibitor Treatment

Below is from a press release Apitope sent out on June 9, 2015. To read it in its entirety, click here. Apitope, the drug discovery and development company focused on disease-modifying treatments that reinstate immune tolerance, announced today that pre-clinical product candidate ATX-F8-117 has been granted Orphan Drug Status by the US Food and Drug […]

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