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FDA Recall

Peanut & Almond Butter Recalled for Salmonella Risk

*This article was original posted by the Associated Press on August 20, 2014. Click HERE to read it in its entirety. Our FitFactor Team works hard to make sure the bleeding disorders community is informed with the latest FDA recalls and shares relevant information to keep you and your family healthy.  __________________________________________________________________ A unit of Hain […]

Infusing Love: Educating the Educators

Our Back to School toolkit was created for parents of children with a bleeding disorder. Check it out for examples of IHP, 504 & IEP plans, and a customizable PowerPoint presentation to help you advocate for your child: http://www.hemophiliafed.org/?p=17892 In a week my oldest son, Marques, will start middle school and I can’t help but to […]

StuffedPeppersNAMINAMI

Peppers Stuffed with Tomatoes & Mozzarella Recipe

Uncertain about what to do with all of the wonderful, fresh finds you gathered from your garden or the local summer produce market?  Here is a healthy and delicious recipe that will help utilize your cherry tomatoes and peppers. A healthy diet includes the essential nutrients that help to reduce your risk of developing chronic diseases, such […]

Cazandra_Moms Blog

Infusing Love: Mama Warriors

Some things can be measured: flour for cookies, a yard of material, an evaluation at work, and the number of times a heart beats, but what about pain?  When your child is in the hospital and is in pain the clinicians will often ask “What number is your pain?” or “Which face is your pain?” […]

Michael and his brother, Patrick, 1972

Never Let What You Can’t Do Define You

By Michael Birmingham Exercise has always been pretty important for hemophiliacs, especially severe hemophiliacs like my brother and I. My parents felt that living an active life would go a long way toward fulfilling that goal. However, exercise is a series of trade-offs. Growing up I was told to, “exercise those muscles, in a less […]

Medical research

EU Gives Hemophilia Sub-Q Injection Orphan Drug Designations

Alnylam Pharmaceuticals, Inc. (ALNY), a leading RNAi therapeutics company, announced today that the European Medicines Agency (EMA) Committee for Orphan Medicinal Products (COMP) has granted Orphan Drug Designations for ALN-AT3 as an orphan medicinal product for the treatment of hemophilia A and hemophilia B. Alnylam is developing ALN-AT3, a subcutaneously administered RNAi therapeutic targeting antithrombin […]

Mark

Living With a Bleeding Disorder Across the Decades

Blood Brotherhood is a national program for adult men with a bleeding disorder and provides a sense of community through education and support. The below articles are written by Blood Brothers enrolled in the program and features their stories of what growing up was like during different decades. _____________________________________________ Carl | Severe Hemophilia  B | 1960s – […]

Industry News

Octapharma’s Hemophilia A Product Approved in Europe

The European Commission has published approval of Octapharma’s Nuwiq ® (simoctocog alfa) for the treatment and prophylaxis of bleeding in all age groups with hemophilia A (congenital factor VIII [FVIII] deficiency). Nuwiq ® is the newest generation of FVIII replacement, produced in a human cell line cultured without additives of human or animal origin. Nuwiq […]

Destinee_Moms Blog

Infusing Love: Assessing the Risk

Risk plays a major factor in what activities we allow our children to take part in. From the moment they are born, we, as mothers, worry about their physical and mental safety, and do our best to guide them in the right direction. Risk helps us determine the limits and boundaries we create to keep […]

FitFactor market bag

Celebrate National Farmers Market Week

The summer markets are in full swing and healthy, fresh produce is in abundance just in time for National Farmers Market Week to be celebrated August 3rd through August 9th, 2014. Thousands of farmers markets across the country offer consumers fresh, affordable, convenient, and healthful products sold directly from the farm. More and more farmers […]

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Assisting and Advocating for the Bleeding Disorders Community