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Destinee_MomsBlog

Infusing Love: A Place of Comfort

It’s that glorious time of year when pumpkin fever has taken over and everywhere you look is pumpkin this and pumpkin that.  Local farmers’ markets are overflowing with a fall harvest of crisp apples and colorful displays of squash and gourds.  Overindulging on warm apple cider donuts is accepted as a guilty pleasure, marking the […]

Sugar

How Sugar and Sweeteners Affect Your Health

Did you know that the average American adult eats approximately 22 teaspoons of added sugar in their diet each day? The food we put into our bodies has a direct impact on how we look, feel, and on our health. For individuals with hemophilia or other bleeding disorders, eating healthy and maintaining a proper weight is especially important because it […]

Kari_MomsBlog

Infusing Love: Taking Care of the Patient & the Caregiver

I don’t think I’ll ever forget the day I got the phone call — the one I had been dreading since my daughter was diagnosed with Platelet Storage Pool Disorder (PSPD). It was 10:30 AM on a Thursday. I was singing to the preschoolers where I work when my colleague brought me the phone. She had that […]

Industry News

PPTA: Ebola Virus and Plasma Protein Therapies

The recent outbreak of Ebola virus has caused great concern among many people. We read stories about isolation, experimental therapies and many deaths. It is understandable that this raises questions for persons who are more vulnerable to infections such as persons with immunedeficencies. We have seen questions and concerns expressed by various persons and would […]

Dear Addy Banner

Dear Addy: Privacy Protection

Dear Addy, I rarely attend bleeding disorder related events because I want to protect my privacy. When I do attend it seems like every time I turn around people try to get me to complete a survey. Why is that? How can I protect my privacy? ~Under the Radar _______________________ Dear UR, Some companies, organizations, […]

Plasma_IPAW Week

HFA Recognizes International Plasma Awareness Week

HFA joins Plasma Protein Therapeutic Association (PPTA) and its other Member Companies sponsor the second International Plasma Awareness Week (IPAW) to be celebrated globally October 12-18, 2014. This event is held annually and is designed to: Raise global awareness about source plasma collection Recognize the contributions of plasma donors to saving and improving lives Increase understanding […]

medical_news

FDA Approves First Combination Pill to Treat Hepatitis C

The U.S. Food and Drug Administration today approved Harvoni (ledipasvir and sofosbuvir) to treat chronic hepatitis C virus (HCV) genotype 1 infection. Harvoni is the first combination pill approved to treat chronic HCV genotype 1 infection. It is also the first approved regimen that does not require administration with interferon or ribavirin, two FDA-approved drugs […]

Young Couple Walking Dog

Walking is the Superfood of Fitness

Running and walking are generally considered safe activities for individuals with a bleeding disorder.  They are frequently recommended because they don’t take a lot of time or cost a lot of money, but can make a big difference in how you feel and in your overall health. The following article from Reuters discusses how walking is the natural movement of […]

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Bullying: A Serious Problem for Kids with a Chronic Condition

Children with special health needs such as a bleeding disorder can be at an increased risk of being bullied because of issues like physical vulnerability, social skill challenges, and intolerant environments. Kids with hemophilia may become a target when they use crutches, are limited to certain activities during recess/gym classes, have a visible PICC line/port, or […]

CDC_women with bleeding disorders

New Study Findings on Young Women and Bleeding Disorders

[glossary_exclude] This information was originally sent by the Division of Blood Disorders in the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) in an email on Wednesday, October 8, 2014.[/glossary_exclude] ____________________________________ Information about bleeding disorders is vital for young women. It can help them recognize […]

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Assisting and Advocating for the Bleeding Disorders Community