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HFA Observes February 28th As Rare Disease Day

The Hemophilia Federation of America (HFA) joins the National Organization for Rare Disorders (NORD) on February 28th, and others around the world in observing Rare Disease Day. The purpose of this day is to focus attention on the needs of patients and families affected by rare diseases. In the U.S., any disease affecting fewer than […]

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Escaping Winter Weather? Take Your Workout with You!

Ready to ditch the ice and snow for warmer temperatures, a sandy beach and some sun?   While it is easy to sit back and relax on vacation, it is also very important to keep up your fitness routine.  Schedules relax while traveling and we tend to over indulge in things that may cause us to […]

Moms Blog_Destinee

Infusing Love: A Life Never Imagined

Have you ever signed up for something you felt you were not quite qualified for, but went ahead and did it anyway? I have, and I’m preparing to do it again.” Several years ago, when I first heard about Washington Days, I never imagined myself actively engaging with legislators.  For most of my life, I […]

medical_news

Acquired Hemophilia A Successfully Treated with Rituximab

The following is an abstract from the March issue of the Mediterranean Journal of Hematology and Infectious Diseases. To read the full article, click here. _____________ Acquired hemophilia A (AHA) is a rare bleeding disorder due to the development of specific autoantibodies against factor VIII. The anti-CD20 monoclonal antibody Rituximab has been proven to be effective […]

Dear Addy_Feb23

Dear Addy: COBRA and the ACA

Dear Addy: It used to be when you left or lost your job you could get COBRA coverage until you found a new job. What is happening to COBRA with ACA implementation? What happens now if I lose my job and need health insurance? Sincerely, Daniel, Hemophilia Patient ___________________________________ Dear Daniel, If you lose your […]

Industry News

Walgreens Infusion Services Becoming a Private Independent Company

  Walgreen Co., a wholly owned subsidiary of Walgreens Boots Alliance, Inc. announced on January 20, 2015 that it has signed a definitive agreement with Madison Dearborn Partners (MDP), a leading private equity firm based in Chicago, under which MDP will acquire a majority interest in Walgreens Infusion Services. With more than 30 years of […]

Scarlett_MomsBlog

Infusing Love: An Unexpected Haven

I’d be lying if I said my nerves weren’t through the roof upon entering the gates to the Taylor Family Foundation’s Camp Arroyo. To say that going to a family camp took me out of my element would be an understatement. I had no idea what I was getting myself into or what to expect. […]

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Living Fit With von Willebrand Disease

One of the most common bleeding disorders in women is von Willebrand Disease (vWD), which occurs in about 1% of the US population. Heavy bleeding is one of the most common problems women report to their doctors. It affects more than 10 million American women each year. This means that about one out of every […]

Industry News

Baxter Reports Data from Extended Half-Life Study

Baxter International Inc. presented additional efficacy and safety data from the Phase III pivotal study of BAX 855, an investigational, extended half-life recombinant factor VIII (rFVIII) treatment for hemophilia A based on ADVATE [Antihemophilic Factor (Recombinant)] at the 8th Annual Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in Helsinki, Finland. The […]

Rare

HFA Partnering With NORD For Rare Disease Day and Hemophilia Awareness Month

In a couple of weeks, the bleeding disorders community will be recognizing Rare Disease Day on February 28, Hemophilia Awareness Month during the entire month of March, and World Hemophilia Day on April 17. These important dates were created to help raise awareness about rare conditions like hemophilia and other bleeding disorders. This year, we are thrilled to partner with the National […]

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Assisting and Advocating for the Bleeding Disorders Community