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June 25, 2009

Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members.

“Now is the time for action.  As individuals and as a community, we must be accountable and make every effort to get our voices heard with local and national congressional leaders during this extraordinary time of health care reform.  If we do not illustrate the challenges and needs of our community through our stories, we risk being lost in the coming changes,” states Kimberly Haugstad, HFA Executive Director.

HFA is dedicated to taking an active grassroots approach to positively affecting healthcare policy change vis-à-vis the Voices Campaign.  Two key staff members are dedicated to ensuring that our voices are being shared with key policymakers in state houses and on Capitol Hill.  Additionally, the HFA policy team recently launched a “Friday Update” via email to keep community members abreast of the reform debate and will launch advocacy blogs on the new enhanced HFA website slated to go live in mid-June. The website will also include ongoing video, audio and written stories of community members sharing their voices and concerns.

The Hemophilia Federation of America is a national 501 (c) (3) organization consisting of 30 member organizations and numerous individual members who offer assistance and grassroots advocacy on behalf of the bleeding disorders community.   Incorporated in 1994, the HFA provides programs and services to improve the quality of life for persons with hemophilia and von Willebrand disease (VWD).

For more information visit our website at www.hemophiliafed.org or call 1-800-230-9797.

 

HFA CONTACT: Susan Swindle, Development Director

Phone: 713-203-8548

Email: s.swindle@hemophiliafed.org

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