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The American Plasma Users Coalition (A-PLUS) and the National Organization for Rare Disorders (NORD) wrote joint comments in response to proposed rules on the PCIP program (temporary high risk pools).  The comments highlight our major concerns which include: 

  • Funding limitations and third party payer prohibitions
  • Eligibility and enrollment limitations
  • Child-only policies
  • The “other criteria” definition for PCIP eligibility
  • The enrollment and disenrollment process
  • Program capacity limits

As a member of the A-PLUS and in collaboration with NORD, the HFA will continue to monitor and submit comments in an effort to participate in the rulemaking process.  To read more about the federal rule making process and how you can participate click here

To read more about the PCIP plans, a recent Commonwealth Fund webinar highlighting the PCIPs in Wisconsin and New Mexico and a new issue brief examining PCIPs across the country, please click here.

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