Okay, So What Can We Do?
By Lori Long and Sarah Shinkman
“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” -Margaret Mead
To find an example of the type of group Margaret Mead speaks about in her famous quote, look no further than our bleeding disorders community. From the 1990s with the passage of the Ricky Ray Hemophilia Relief Act, to the enactment of the Affordable Care Act in the 2000s, community members have demonstrated a strong commitment to action and grassroots advocacy for decades. If the recent election reaffirmed anything for our community it is that a grassroots approach to advocacy is going to be crucial.
One of the great lessons of the 90s was that connecting people directly to their legislators and policy makers has an incredible impact; it’s the founding principle of HFA. With adversity, comes resilience. As we continue to act on behalf of our community, we should always consider those who fought before: what would Ryan White or the Ray brothers do?
Assisting and Advocating for the Bleeding Disorders Community