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Communicating With Your State Legislator

Mark created a Hemophilia Task Force group in Connecticut.  This group had state legislators, national non-profit advocates, patients, and hemophilia doctors working together to ensure people with bleeding disorders in CT receive the best care possible.  What are you waiting for?! YOU can make a difference in your state too!

BloodBrother

Living With A Bleeding Disorder

Features: Terry Lamb, Karl Weixler, Tera Griffith & Tye Cowans.  These four individuals share what life is like being a part of the bleeding disorders community.

Derick Stace-Naughton

Derick Stace-Naughton, a young man with von Willebrand’s Disease, started the group “Students for the Awareness of Bleeding Disorders.”  Derick wants YOU to urge your member of congress to co-sponsor H.Con Res.147.  H.Con.Res.147 promotes screening for vWD.

Laveane

By Laveane Lovelady, Damascus, AR Download Laveane’s Story This story is about me, but it all started when my son Ryan was born August 15, 1989. It was after his birth when I was finally diagnosed with mild Hemophilia A, because he was diagnosed with severe Hemophilia A. My blood pressure had gotten dangerously high […]

Leland

Leland is a teenager with hemophilia and an inhibitor who is concerned with lifetime caps and how they affect his future in the bleeding disorders community.

Destiny’s Story: They Need to Hear from Us

I had the honor of going to Washington D.C to visit our Capital. It was everything you would image it would look like. It was a huge building looking statuesque amongst all the other buildings. Standing strong and regal, it was ominous and intimidating. Once inside I could hear the echoes of footsteps and ghostly whispers.

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Assisting and Advocating for the Bleeding Disorders Community