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My Journey with Pain

Pain is a very personal experience. Everyone has their own definitions, feelings, and memories associated with pain. Some pain is greater than others. Some pain paralyzes you, and some pain motivates you. How someone chooses to define and cope with pain is molded by his/her experiences throughout a lifetime. Below is a story of one […]

Dear Addy

Dear Addy: Is It Safe To Get A Tattoo With Hemophilia?

  Dear Addy, I want to get a tattoo, but am worried that my hemophilia will complicate things. Is this safe? Signed, Un-Inked ________ Dear Un-Inked, This is a subject that you and your hematologist need to discuss. Here are some questions to ask your hematologist: Safety—Is it safe for someone with hemophilia to get […]

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Infusing Love: Thanks ABC!

Wow – what a difference a day makes!  Yesterday our community was outraged by a careless remark made on the ABC television drama, “Secrets and Lies” which aired on Sunday, March 15th.  I, along with thousands of others, voiced my concern in a variety of ways – social media, emails, and good old fashioned talking. […]

Project RED

Project RED: The Sequel

NOTE: This is the second of a two-part story. Click here to read Part I. Working to identify problems and explore solutions among the bleeding disorders healthcare system, the Care Access Working Group (CAWG) continues the efforts on behalf of Project Reaching Everyone Directly (RED). CAWG listens to stories from across the bleeding disorders community […]

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Dear Addy: Holiday Travel

  Dear Addy, “My family and I are traveling out of state for the holidays. It is our first time traveling away from our hemophilia treatment center. Because of my son’s bleeding disorder we are concerned about insurance covering any emergency medical care he may need at an out of state hospital. How can I […]

Northern CA DIA

Dads in Action Spotlight: Hemophilia Foundation of Northern California

[glossary_exclude] The recent addition of Dads in Action (DIA) to the Hemophilia Foundation of Northern California (HFNC) has been instrumental in encouraging our dads to connect, participate and learn from each other. While we worried how successful we would be (Would dads who didn’t know each other open up, share, or even show?!), we were […]

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A Caregivers Perspective: Hemo Wife Uncorked

[glossary_exclude] I worry when he’s late coming home and I haven’t heard from him in a while. I worry when I can’t get a hold of him on the phone for hours. I worry when he boards a plane for a trip. I worry when we do any physical activity where there’s a possibility he […]

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A Caregiver’s Perspective: The Partner

I knew I was on to something good when I arrived home from meeting Brent for the first time. We had a fun night out after a spontaneous meeting through a mutual friend. When I got home, I broke the unwritten rule of waiting a while to text someone new. I was thrilled when he […]

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VIDEO: Putting A Face to Martial Arts

When considering a physical activity for themselves or their family members with a bleeding disorder, many people overlook the possibility of martial arts.  It is a sport that can be considered for its many benefits beyond building muscle tone, flexibility and general health.  Some of the biggest benefits that come from practicing any of the […]

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Deciding to Chase the Dream

It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to  keep them flexible and strong.  Physical activity also helps individuals to maintain a healthy weight which keeps less stress off the joints, and has even proven to […]

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Assisting and Advocating for the Bleeding Disorders Community