Receive Our Newsletter

World Hemophilia Day2

Thousands of Families Observe World Hemophilia Day

Today (April 17th),  tens of thousands of families across our nation and around the world will recognize World Hemophilia Day to raise awareness of bleeding disorders. “World Hemophilia Day brings public awareness about bleeding disorders and encourages the development of improved treatment,” said Kimberly Haugstad, Executive Director of Hemophilia Federation of America (HFA). “Worldwide, 1 in 1,000 […]

Bloomberg News: Merck Data a Potent Rival to Gilead’s Hepatitis C Pill

By: Drew Armstrong Merck & Co. (MRK)’s experimental hepatitis C pill produced clinical trial results positioning the drug as a strong competitor to a potential blockbuster therapy from Gilead Sciences Inc. (GILD) Merck’s two-drug combination once-a-day pill stopped the virus in 98 percent of newly treated patients with few major side effects, according to a […]

FF Karate Pic 5 Anthony P

The Benefits of Martial Arts

When considering a physical activity for themselves or their family members with a bleeding disorder, many people overlook the possibility of martial arts. Martial arts can be defined as any of the traditional forms of Oriental self-defense or combat that utilize physical skill and coordination without weapons, such as karate, aikido, judo, or Kung Fu, […]

Blood Sisterhood_Trevor

A Carrier Seen Through Her Father’s Eyes

Having hemophilia is an interesting challenge for an individual. Throughout my life, I have tried to learn as much as I could about this condition and find a way to overcome the adversities it often presents. I thought I had this thing down to a science, but I had no idea what to expect as […]

Dr Young_CDCslide

CDC Webinar: New Challenges in Hemophilia

On Thursday, April 3, 2014 the Centers for Disease (CDC) control hosted an informative and important webinar about new challenges facing the hemophilia community. If you missed it, take a look at Dr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles, presentation slides about about the impact of: overweight and […]

Mom's Blog_Kimberly_Ben

Infusing Love: It’s All About the People

In 2008 my husband, two kiddos and I traveled to our first Hemophilia Federation of America (HFA) annual Symposium.  We had been to a couple of NHF meetings since the kids had been born but we did not know much about HFA.  Kim Bernstein, a truly talented community advocate, had been pushing me that I […]

NY Times: Progress Against Hepatitis C, a Sneaky Virus

Forty years ago, a beloved neighbor was bedridden for weeks at a time with a mysterious ailment. She knew only that it involved her liver and that she must never drink alcohol, which would make things worse. It was decades before the cause of these debilitating flare-ups was discovered: a viral infection at first called […]

Inhibitor_Family Camp

Inhibitor Family Camp: Our Own Kind of Oz

What is Inhibitor Family Camp? Hemophilia Inhibitor Family Camp was founded in 2010 by Comprehensive Health Education Services (CHES), and is made possible through an educational grant provided by Novo Nordisk. There are currently two programs held annually, both take place at camps that are part of the Serious Fun Network (formerly known as The Hole […]

Mom's Blog_World Aids Day

Keeping Their Memory Alive: World AIDS Day

Had I been the Matthew my mother was expecting to give birth to, my life would have been astronomically different. I was born right around the time the first factor concentrates to treat hemophilia were available for home use. Had I been born a male rather than a female, I probably would have been diagnosed […]

A 504 Plan Can Help Protect Your Child

I’m just like any other father when it’s time for my children to go back to school—so excited! All kidding aside, transitioning back to school can be difficult for everyone if you’re not prepared. When it comes to the extra challenges our kids with bleeding disorders face, the added stress can become an even larger […]

Page 7 of 11« FirstPrevious234567891011

Assisting and Advocating for the Bleeding Disorders Community