Receive Our Newsletter

Infusing Love logo_square

Infusing Love: Knowing How and When to Advocate

This past May our family was invited to attend the HFA Patient Fly-In to Washington, DC. The patients and caregivers were briefed on the talking points the evening before our scheduled meetings with our Senators and Representatives. As you know, health care is a hot topic and there were many talking points that needed to […]

Infusing Love logo_square

Infusing Love: Pondering Ports

  With a new diagnosis of hemophilia my world was turned upside down. What’s only been 4 months since Maddox was diagnosed feels like a year or two. I feel like I’ve grown so much in just a few months. I have put my life vest on and jumped right in. While, sometimes I’m afraid […]

Infusing Love logo_square

Infusing Love: The Writing is on The Chalkboard

As I walk through the aisles of our local office supply store, I can’t help but to get a tinge of sadness. The smell of fresh paper, pens, pencils, and crayons are enough for this former teacher to break down right there in the middle of Office Depot. Not that I am unhappy doing what […]

Infusing Love logo_square

Infusing Love: Mama Is Always Right

  The early years of my motherhood experience were pretty lonely. We lived across the country from our extended family and I didn’t know any one in the neighborhood, and frankly, the other moms I did meet weren’t exactly people I wanted to socialize with. My go-to’s for parenting advice were books I had bought […]

Infusing Love logo_square

Infusing Love: Meet Kristi

  Happy summer to all! I’m honored to join the ranks of the Infusing Love bloggers, and appreciate the opportunity to share my family’s stories and perspectives on living with hemophilia. Our family includes myself, my husband Nick, and our son, Liam, who is 4 ½. We live in Vermont right on the border with […]

Infusing Love logo_square

Infusing Love: Not What I Had Planned

I like control. I like order. I like a plan. I like lists. Not in an overly aggressive way, but in a way that makes me feel calm. If I can plan for it, I can feel in control of it. Hemophilia does not work this way. Hemophilia and all the moving parts involved with […]

Infusing Love logo_square

Infusing Love: As He Climbs On the Bus

By now, for most of us another school year has come to an end. For me this usually means complete and utter joy! No more homework, no more early wakes up to catch the bus, no more worrying about clean PE uniforms, and the list goes on and on. Nicholas just finished the 8th grade. […]

Infusing Love logo_square

Infusing Love: Change of Plans

  It’s that time of year when boys and girls go to summer camp. Church camp, art camp, band camp, sports camp and yes, hemophilia camps. My idea of camping and “roughing it” is when we stay at a hotel that is not a “suite.” When my oldest son, Julian, was nearing the age of […]

Infusing Love logo_square

Infusing Love: Wonder Women

  Motherhood is hard work, and often, moms don’t give themselves credit where credit is due. As moms, we need to brag about ourselves and celebrate our victories. We asked our Infusing Love bloggers to share those motherhood moments where they thought to themselves, “Yeah, I’m owning this mom thing.” Try to think of your […]

Infusing Love logo_square

Infusing Love: Meet Stephanie

As parents, we are always talking about the safety of our kids, families, cars, food, neighborhoods, churches, malls etc.  Let’s face it: our world is not as “safe” as it used to be, except when it comes to hemophilia! As a mother of a very active two-year-old, a sister of a stubborn 40-year-old, and the niece […]

Page 1 of 2412345678910NextLast »

Assisting and Advocating for the Bleeding Disorders Community