While bleeding disorders like hemophilia and von Willebrand Disease (vWD) affect men and women, these conditions present unique issues for women because of heavy or abnormal bleeding during menstrual cycles and after childbirth. Many areas crucial to the diagnosis and treatment of bleeding disorders in girls and women are poorly understood. According to the CDC, […]
Ryan and EJ share their experiences growing up with hemophilia. The future of our community is hopeful with the advancements in care and support from others who understand!
Click here for Lew Collins Story Thank you to Lew Collins and Matrix Health for sharing this story with HFA!
This video features Sal Livolsi & Linda Wyman-Collins; helping women with bleeding disorders is close to both of these community members hearts. Sal has a wife and son with hemophilia and Lew talks from personal experience of having a bleeding disorder.
Von Willebrand Disease (vWD) is the most common type of bleeding disorder, affecting males and females equally (it is estimated that about 1-2% of the world’s population has vWD). However, because symptoms can be mild, many people affected have not been diagnosed. People with vWD have decreased or malfunctioning Von Willebrand factor (VWF) activity and therefore […]
Jill & Kathy have supported each other through the toughest of times.
Assisting and Advocating for the Bleeding Disorders Community