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Health & Wellness

Tips to Remember When Checking Your Child Into School

August 30, 2012

If your child is just starting school or changing schools, it is important to talk face-to-face with school officials about your child’s bleeding disorder. Children spend a significant amount of time in the care of others, and it is imperative the school is aware of simple steps to ensure your child’s care and safety. Below […]

Breaking the Vicious Cycle

July 20, 2012

Breaking the vicious cycle: investing prophylactic factor use in functional body mass written by:  Ian Muir   Age: 27       Severe Hemophilia A Note: I have been fortunate to have had access to prophylaxis since I was 5 and extremely supportive parents. I have no doubt that these are the two largest contributing factors to my healthy […]

Get healthy,Give support,Get in Gear!

July 15, 2012

Hopefully you have downloaded and are already using HFA’s mobile app: Get in Gear.  It is a free app, available for download and use on both Apple and Android mobile devices.  This app allows the user to raise money and awareness for people in the bleeding disorders community: those affected by Hemophilia or von Willebrand […]

Download our free, new mobile App to “Get in Gear” with FitFactor & HFA!!

June 15, 2012

Would you like to help a fantastic charitable organization without having to write a check? How about helping the same organization while helping yourself get healthy?  Now you can do both! The Hemophilia Federation of America (HFA) has developed the Get in Gear mobile application.  It is designed to encourage people to become more active. It can be used […]

Largest health insurer to keep key parts of law regardless of court ruling

June 11, 2012

Largest health insurer to keep key parts of law regardless of court ruling from the Washington Post: http://www.washingtonpost.com/national/health-science/largest-health-insurer-to-keep-key-parts-of-law-regardless-of-court-ruling/2012/06/10/gJQA7VYfTV_story.html?tid=pm_pop By N.C. Aizenman, Monday, June 11, 12:11 AM The nation’s largest health insurer will keep in place several key consumer provisions mandated by the 2010 health-care law regardless of whether the statute survives Supreme Court review. Officials at UnitedHealthcare will announce Monday that whatever […]

HFA Observes National Hepatitis Awareness Month

May 3, 2012

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of HFA Celebrates Hepatitis Awareness Month Washington, D.C. – In 2001, the Centers for Disease Control (CDC) and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral […]

HFA Observes National Hepatitis Awareness Month

May 3, 2012

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of HFA Celebrates Hepatitis Awareness Month Washington, D.C. – In 2001, the Centers for Disease Control (CDC) and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral […]

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

April 27, 2012

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community pharmacists to immediately stop the acquisition of Medco Health Solutions by Express Scripts, Inc. The judge will next decide whether to throw out the lawsuit. The pharmaceutical benefits management companies Express Scripts and Medco merged on […]

Press Release: HFA Begins Accepting Applications for Items Program

April 3, 2012

Link to PDF of HFA Begins Accepting Applications for Items Program HFA Begins Accepting Applications for Items Program  Items Program Reimburses for Medically Necessary Items FOR IMMEDIATE RELEASE  April 3, 2012 Washington, D.C. – Today, Hemophilia Federation of America’s (HFA) Helping Hands Emergency Assistance Program began taking applicants for the Bleeding Disorder Items Program — a […]

HHS Considering Study on Blood Donation Standards for Gay and Bisexual Men

March 16, 2012

By Jane Norman, CQ HealthBeat Associate Editor The Department of Health and Human Services wants input on how to design a study that would detail under what circumstances men who have a history of sex with other men should be allowed to donate blood. Under current Food and Drug Administration policy, men who have had […]

How to Live Well With Chronic Pain: Steps You Can Take Today

March 15, 2012

From the American Pain Foundation: By Rebecca Rengo-Kocher, MA, MSW, LCSW, ACSW It’s easy to feel overwhelmed when you live with chronic pain. Every day life can be a struggle, seemingly impossible to overcome. You push yourself with every ounce of energy right down to your soul, and it feels like nothing’s there. Simple activities […]

Cholesterol basics

February 24, 2012

Cholesterol is a fatty substance that is found in the body and is carried in the bloodstream.

Prolor Reports Positive Results in Hemophilia Study

February 14, 2012

Link to Article The study found that the mice which received Factor VIIa-CTP showed a superior survival rate. Prolor Biotech Inc. (AMEX: PBTH; TASE: PBTH) today reported positive results in a comparative study of its longer-acting version of the hemophilia drug Factor VIIa, Factor VIIa-CTP drug, in a preclinical trial in mice. The study is […]

Developments in Clinical Use of Plasma Therapies

February 14, 2012

Link to Website IPPC 2012 SPEAKERS TO ADDRESS DEVELOPMENTS IN CLINICAL USE OF PLASMA PROTEIN THERAPIES BRUSSELS, BELGIUM (February 14th, 2012) The International Plasma Protein Congress (IPPC) 2012 will take place on March 13-14 in Madrid, Spain at the Hotel Melia Princesa and will feature a panel of experts discussing their findings on the development […]

HCV/HIV Drug Safety Communication – Drug Interactions

February 9, 2012

Link to Official FDA Alert         [Posted 02/09/2012] Victrelis (boceprevir) and Ritonavir-Boosted Human Immunodeficiency Virus (HIV) Protease Inhibitor Drugs: Drug Safety Communication – Drug Interactions AUDIENCE: Infectious Disease, Pharmacy ISSUE: FDA notified healthcare professionals and patients that drug interactions between the hepatitis C virus (HCV) protease inhibitor Victrelis (boceprevir) and certain ritonavir-boosted human immunodeficiency virus […]

Recall of Crickit® Convenience Kits

February 7, 2012

Click here for FDA recall North American Rescue, LLC Announces A Follow-Up to the Recall of Crickit® Convenience Kits Because of Possible Health Risk Related to Nationwide Recall of Triad Povidone Iodine Prep Pads Contact: Consumer 1-888-689-6277, Monday through Friday, 8:00am to 5:00pm (ET) FOR IMMEDIATE RELEASE – February 6, 2012 – Greer, SC, February […]

Treatment for Blood Disease Is Gene Therapy Landmark

December 12, 2011

By NICHOLAS WADE Published: December 10, 2011 Medical researchers in Britain have successfully treated six patients suffering from the blood-clotting disease known as hemophilia B by injecting them with the correct form of a defective gene, a landmark achievement in the troubled field of gene therapy. Hemophilia B, which was carried by Queen Victoria and […]

Getting your ZZZ’s

December 4, 2011

Eating well and exercising are great ways to start on the path to wellness.  Another area of importance that most of us forget to consider is the amount of sleep we get.  Making the choice to get enough sleep is a healthy decision for you and your family.  Sleep not only affects our daily activities, but […]

Medicare Enrollment Period Ends December 7, 2011

December 2, 2011

Medicare annual open enrollment ends in less than 1 week.  Medicare beneficiaries who do not have a Part D plan can enroll in one, and those who do have Part D coverage can change plans.  Beneficiaries can also return to traditional Medicare from a Medicare Advantage (MA) plan, enroll in an MA plan, or change […]

NIH: World AIDS Day

December 2, 2011

NIH Statement on World AIDS Day 2011 Anthony S. Fauci, M.D., Director, National Institute of Allergy and Infectious Diseases Jack Whitescarver, Ph.D., Director, NIH Office of AIDS Research Francis S. Collins, M.D., Ph.D., Director, NIH Direct Link to NIH statement This year, we commemorate World AIDS Day during the 30th year since the first reported […]

Access to HCV Therapy

November 29, 2011

Next Push – Advanced Therapy Our Citizen Petition to the FDA in 2009 (with amendment), asked for recognition of the HCV crisis in our community and it requested the earliest possible access to advanced HCV therapies.  We have made substantial progress in moving regulatory policy toward appropriate urgency. However, as advocates and patients, we are […]

Beating the Bugs

November 25, 2011

 For most of us, fall and winter means less time outdoors in the fresh air and more time spent in close quarters with those that we work, play, learn and live with.  It is a great opportunity for cold and flu viruses to work their way from one person to the next. While we all […]

Anti-Inhibitor Prophylaxis

November 4, 2011

Anti-Inhibitor Coagulant Complex Prophylaxis in Hemophilia with Inhibitors Link to article Cindy Leissinger, M.D., Alessandro Gringeri, M.D., Bülent Antmen, M.D., Erik Berntorp, M.D., Chiara Biasoli, M.D., Shannon Carpenter, M.D., Paolo Cortesi, M.Sc., Hyejin Jo, M.S., Kaan Kavakli, M.D., Riitta Lassila, M.D., Massimo Morfini, M.D., Claude Négrier, M.D., Angiola Rocino, M.D., Wolfgang Schramm, M.D., Margit Serban, […]

Chinese Firms Linked to Tainted Heparin Still Supplying U.S.

October 28, 2011

By Anna Edney Courtesy of Bloomberg News Oct. 26 (Bloomberg) — Two Chinese companies implicated in supplying contaminated ingredients three years ago to Baxter International Inc. for its blood thinner heparin are still supplying product to the U.S., Republican lawmakers said. Baxter recalled the blood thinner in 2008 amid reports of deaths and allergic reactions. […]

Relieving Pain in America

October 19, 2011

Click for link to article Chronic pain affects an estimated 116 million American adults—more than the total affected by heart disease, cancer, and diabetes combined. Pain also costs the nation up to $635 billion each year in medical treatment and lost productivity. The 2010 Patient Protection and Affordable Care Act required the Department of Health […]

Medicare Open Enrollment Begins October 15th This Year

September 14, 2011

From the Medicare Rights Center: Did you know that there are new dates to remember for Medicare’s Fall Open Enrollment Period? Starting in 2011, Fall Open Enrollment (also known as the Annual Coordinated Election Period, or ACEP) begins on October 15 and lasts through December 7. During this period, people with Medicare have the right […]

Understanding the Debt Ceiling and the “Super Committee”

September 9, 2011

In early August the President signed into law the Budget Control Act of 2011, which is reported to save approximately $917 billion over the next ten years and will raise the debt ceiling by $900 billion, therefore carrying the government through the end of 2011. The bill also establishes a new joint Congressional committee that […]

Medical mystery: UMass doctors race to counter rare blood disorder

September 2, 2011

By Geraldine A. Collier Courtesy of Worchester Telegram & Gazette Doctors are taught in medical training to “look first for the horses, not the zebras.”  In other words, look first for the typical causes of symptoms before exploring more exotic possibilities. But, former Worcester School Superintendent John Durkin wouldn’t be alive today if his doctors at […]

America’s Innovation Agency: The FDA

September 2, 2011

By instilling confidence in U.S. products and technologies, we stimulate economic growth and open markets overseas. By MARGARET A. HAMBURG Courtesy of the Wall Street Journal There are encouraging signs that the pharmaceutical industry’s pipeline of new products is not as stalled as some say.  Already in 2011, the Food and Drug Administration (FDA) has approved […]

High Costs Of Specialty Drugs

August 23, 2011

By Julie Appleby KHN Staff Writer Aug 22, 2011 This story was produced in collaboration with For Judy Ariba, one of the most harrowing moments in her battle against a rare form of leukemia occurred after she had already endured a long hospital stay and grueling chemotherapy: Her bill for a prescription cancer drug jumped […]


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