Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Dear Addy, I watched a few of HFA’s PRIDE Project webinars. Can you explain to me how engaging in research will make me a better advocate? Signed, Curious about Research Dear Curious, It’s great to hear that you watched some of the PRIDE Project webinars, as those webinars provide an introduction to and basic training […]
!Mes Nacional de la Herencia Hispana! Publicación de la semana cuatro Alguna vez se ha preguntado como sabe su doctor que el medicamento que le está recentando es efectivo y adecuado para tratar su condición… A través de la investigación se informan decisiones sobre medicamentos, así como otras preguntas sobre la eficacia, seguridad e idoneidad de […]
The 2018 Gears for Good Ride takes place Sept. 21-23 from West Virginia to Washington, D.C. Here’s your itinerary for the ride!
Featured Stories: HFA, along with other patient groups, continues to argue against restrictive Medicaid eligibility policies. HFA has written before about a new federal policy that allows states to cut off Medicaid coverage for adults who don’t meet state work requirements. The US Centers for Medicare and Medicaid Services has so far approved work requirements […]
Dear Addy, I saw a post on HFA’s Facebook page about a Virtual Hill Day on June 12. Can you tell me more about this and how people outside of D.C. can be involved? Signed, Virtual Visitor Dear Visitor, Every year, HFA hosts a fly-in for members of the bleeding disorders community to come to […]
Every year at Symposium, there is some special moment that defines that year’s event for me. As we kick off our 2018 event tomorrow, I’m reflecting back on my favorite memories from the last five years of Symposium: 2013: Frisco, TX (I actually have two favorite memories from this year.) This picture encapsulates our […]
Dear Addy, I’ve heard writing an op-ed for my local newspaper is a good way to spread awareness about bleeding disorders. I’d like to submit a piece during Bleeding Disorders Awareness Month. Can you offer tips for submitting my story? Signed, Ready-to-Write Dear Writer, Writing an op-ed or opinion piece is a great way to […]
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