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A Little Bit of Relief

For parents of children with hemophilia, the future is a constant worry.  While this will always be the case, the recent healthcare reforms have provided a little bit of relief.  Heidi and Andrew Forrester from Washington are the parents of William, a two-year-old with severe hemophilia A.  While William was lucky enough to be covered […]

The Browns

As a new mother, Bert Brown was filled with joy, excitement, hope, and the wonderment of this miraculous experience. Imagine then, as you are recovering, being told by your doctor that the precious baby you just delivered several hours ago has hemophilia, a genetic bleeding disorder.  Your world has turned upside down and your thoughts […]

Are you a teenager age 16-19 and living with hemophilia?

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CSL Behring Announces Availability of Next Generation HeliTrax® System for People with Hemophilia A

 Custom software platform is first internet-enabled mobile application to interface directly with patient management systems used by hemophilia treatment centers   KING OF PRUSSIA, Pa., Dec. 1, 2010 /PRNewswire/ — CSL Behring announced today the availability of the next generation HeliTrax® System as part of a specially designed software platform for Apple’s iPhone®, iPod touch®, […]

"Bad Blood" DVD Now On Sale!

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Bleeding Disorders in the News

Our voice is being heard!  The media is helping us share our story.  Check out our community members who were featured in the news!

POZ: "Blood, Sweat and Tears" by Shawn Decker

POZ article link POZ speaks with Marilyn Ness, Emmy Award-winning producer, about Bad Blood, a documentary that chronicles how the hemophilia community fought to protect the blood supply from HIV. What inspired you to make a documentary about this often forgotten chapter in HIV/AIDS history? I grew up with Mathew Kleiner [an HIV-positive advocate who […]

Advisory Committee on Blood Safety and Availability Announcement

ANNOUNCEMENT: The Advisory Committee on Blood Safety and Availability is meeting November 4-5, 2010. The first order of business for today’s session was the swearing in of new members. NCHS is proud to announce that Ed Burke, Director of Advocacy and Outreach/Interstate Sales for Ethical Factor, a division of NCHS, has been appointed to a […]

B. Braun Voluntarily Recalls Seven Lots of Heparin Manufactured in 2008 Due to Supplier-Initiated Recall of Heparin Active Pharmaceutical Ingredient (API)

Fri, 29 Oct 2010 12:59:00 -0500  Read More B. Braun Medical Inc. (B. Braun) was recently notified by its supplier, Scientific Protein Laboratories LLC (SPL), of a nationwide recall of a lot of Heparin Sodium USP Active Pharmaceutical Ingredient (API) sold to B. Braun because additional testing of retained crude heparin samples used by SPL to […]

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