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Von Willebrand Disease: A Family Affair

Von Willebrand Disease (vWD) is the most common type of bleeding disorder, affecting males and females equally (it is estimated that about 1-2% of the world’s population has vWD). However, because symptoms can be mild, many people affected have not been diagnosed. People with vWD have decreased or malfunctioning Von Willebrand factor (VWF) activity and therefore […]

Chapter Excerpt From 'The Cure for the Chronic Life: Overcoming the Hopelessness That Holds You Back' by Deanna Favre and Shane Stanford

Link to article Wednesday, October 20, 2010 Healing He has sent me to comfort the brokenhearted. Isaiah 61:1 A cheerful heart is good medicine, but a broken spirit saps a person’s strength. Proverbs 17:22 “Lord,” he said, “if you want to, you can make me well again.” Jesus reached out and touched the man. “I […]

Michigan Blue Cross in the News over Pricing

U.S. Sues Michigan Blue Cross Over Pricing (Click the title for a link to the full article) By ROBERT PEAR Published: October 18, 2010 WASHINGTON — The Justice Department sued Blue Cross Blue Shield of Michigan on Monday, asserting that the company, the state’s dominant health insurer, had violated antitrust laws and secured a huge competitive advantage […]

HFA Welcomes Three New Member Organizations

FOR IMMEDIATE RELEASE:            October 11, 2010 Washington: DC:  Hemophilia Federation of America (HFA), a community focused national organization serving the needs of individuals and families with bleeding disorders since 1994, is pleased to announce the addition of three new member organizations in 2010 as indicated below: The Connecticut Hemophilia Society, Inc. (CHS), founded on February […]

Michael Bishop — You Are Not Alone

By Michael George Bishop My name is Michael George Bishop and I have Hemophilia B with inhibitors. I decided to share my story with the Hemophilia Federation of America (HFA) and “Voices” because I wanted other kids like me, with hemophilia -and those in physical or emotional pain – to know they are not alone […]

HFA President, Brayshaw Host President Obama in Backyard

Washington, DC:  President Barack Obama held a backyard discussion on healthcare reform at the home of Hemophilia Federation of America’s President, Mr. Paul Brayshaw.  Paul, an individual with Hemophilia is a resident of Falls Church, VA. He opened the forum with a statement regarding the positive impact of the Affordable Care Act as it relates to individuals […]

URGENT: Voluntary Market Withdrawal – September 23, 2010 Octagam [Immune Globulin Intravenous (Human)] 5% Liquid Preparation

Visit FDA link to learn more: <http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/Recalls/ucm227133.htm>

Medical Alert: Shortage of DDAVP IV

NHF Medical Advisory #411: September 24, 2010 Shortage of DDAVP IV The Food and Drug Administration has issued a notice that there is currently a shortage of Desmopressin Acetate (DDAVP), Intravenous Formulation, due to increased demand and manufacturing delays. Three pharmaceutical companies currently distribute and market this product in the US.  Hospira reports that it […]

HFA President, Paul Brayshaw hosts President Barack Obama’s Backyard Health Care Policy Forum

For Immediate Release: Wednesday, September 22, 2010 Washington, DC:  President Barack Obama held a backyard discussion on healthcare reform at the home of Hemophilia Federation of America’s President, Mr. Paul Brayshaw.  Paul, an individual with Hemophilia is a resident of Falls Church, VA. He opened the forum with a statement regarding the positive impact of the Affordable […]

The September 2010 FDA Patient Safety News is now available

Click here for the 2010 FDA Patient Safety News

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