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The September 2010 FDA Patient Safety News is now available

Click here for the 2010 FDA Patient Safety News

NY Times Looking for Patients to Interview

 From: National Association of Rare Disorders (NORD) Re: New York Times article regarding genetic testing and medical records The New York Times has contacted NORD for assistance in identifying patients to interview for a story on medical privacy and, specifically, what should be done when patients say they don’t want results from genetic tests in […]

New York City Hemophilia Chapter

Click here For the Immediate Release  New York City Hemophilia Chapter Names Glenn Mones Director of Communications New York, NY – August 10, 2010 – The New York City Hemophilia Chapter (NYCHC) has appointed Glenn Mones to the position of Director of Communications, according to chapter President Shari Bender. “We’re thrilled to have Glenn as […]

HFA Adds New Blood Brotherhood Sites

FOR IMMEDIATE RELEASE: Monday, August 9, 2010  Washington, DC: The Hemophilia Federation of America (HFA) is pleased to announce the addition of two new Blood Brotherhood sites, Hemophilia Foundation of Northern California (HFNC) and Hemophilia Foundation of Minnesota/Dakotas (HFMD). Other states hosting local community support groups include Tennessee, Texas, North Carolina, Arizona, New York, Illinois, […]

My Camp Family

Rocky believes that having hemophilia has provided him with many opportunities and credits his camp family for showing him the right path.

Hemophilia survivor Leeroy Carter turns 90

BY JOSHUA JAMERSON FREE PRESS SPECIAL WRITER Posted July 21, 2010 Leeroy Carter is a rare longtime survivor of hemophilia, a bleeding disorder that often shortens the life of those who have it. But the Highland Park resident has far surpassed his peers, becoming the oldest hemophilic in Michigan and the second oldest in the […]

Let Him Go Let Him Grow

Dennis and Denise have a teenage son with hemophilia, they encourage their son to focus on school because he needs to find a stable job with good insurance.

Winners announced for 2010 BioRx Educational Scholarships

News Release                        June 21, 2010 (Cincinnati, Ohio)   BioRx, a specialty pharmacy, and Hemophilia of North Carolina, a non-profit organization that assists and educates persons affected by bleeding disorders, announce the winners of the 2010 BioRx Educational Scholarships.  Each of the winners receives a $2,000 scholarship.  The scholarships are funded by BioRx through an educational grant, […]

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Helping Out a Friend

Pam helped Ann through the diagnosis of her son’s bleeding disorder.

Friendship Through Tough Times

Jill & Kathy have supported each other through the toughest of times.

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Assisting and Advocating for the Bleeding Disorders Community