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May is National Hepatitis Month

May is National Hepatitis Month Earlier this year the Institute of Medicine (IOM) released a report on Viral Hepatitis in the United States and called for efforts to increase knowledge and awareness of this major public health problem. During the month of May, CDC and our public health partners are celebrating the 15th anniversary of […]

Access to Coverage for Young Adults

Posted April 29, 2010 By Jenny Backus, Acting Assistant Secretary for Public Affairs Young adults often have a hard time getting affordable health insurance.  Some go into jobs that don’t offer health benefits, some can’t afford it, and some are denied it because they have a pre-existing condition.  Those days are coming to an end.  […]

The Murry Family

A Tennessee couple talks about raising their 3 children and juggling their life with hemophilia.

Raising a Family with Hemophilia

Chuck and Vicki talk about their family life with hemophilia.

Today is the 20th anniversary of the death of Ryan White

Community member archivist, Barry Haarde has a wonderful collection of community historical news.  He has been distributing the information via “archieve e-newsletter.  The HFA would like to acknowledge and thank Barry for allowing us to share with the greater community his post today, honoring the anniversary of the death of Ryan White: Today is the 20th anniversary of the death of Ryan […]

College Student Shares His Story

Christian Rodriguez, an HFA  advocacy intensive participant is an inspiration to the bleeding disorders community.  Christian has made it his mission to improve the lives of himself and the people in his community by sharing his story.  The goal of the intensives program is to inspire participants to take an active, grassroots approach to effecting […]

A Tribute to Dr. Robert Janco

Disease Area Lead, Pfizer Hematology Trusted colleague, outstanding clinician and friend of the hemophilia community, Dr. Robert “Bob” Janco passed away on March 9 after a short but aggressive illness. Bob had a wealth of experience in the diagnosis and clinical management of adults and children with congenital bleeding disorders. He most recently served at Disease […]

HFA Press Release: Facebook Fans Bring Community Friends Together

FOR IMMEDIATE RELEASE: Wednesday, March 10, 2010 Washington, D.C.:  There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact.  At the Hemophilia Federation of America (HFA), this […]

Fifth Generation Blood Brother

John Reed inspires with his positive outlook on his life with hemophilia.  John decided early on that he was not going to let hemophilia control his life, he was going to take control and live his life.

Communicating With Your State Legislator

Mark created a Hemophilia Task Force group in Connecticut.  This group had state legislators, national non-profit advocates, patients, and hemophilia doctors working together to ensure people with bleeding disorders in CT receive the best care possible.  What are you waiting for?! YOU can make a difference in your state too!

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Assisting and Advocating for the Bleeding Disorders Community