Receive Our Newsletter

Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall

Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets Exel/Exelint “Securetouch+” Safety Huber Infusion Sets Audience: Hospital Risk Managers, Surgical Service personnel FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro Medical Corporation for Exelint International Corporation due to […]

Close-Up Wedding

Through Thick and Thin

Mark and Sasha give us a peek into their lives as a couple dealing with Hemophilia, HIV and hepatitis C.  They discuss the importance of community and the value of support from people who understand.

340B Prime Vendor Program, managed by Apexus, and the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers.

IRVING, Texas/ Lansdale, Pa (January 14, 2010) – The 340B Prime Vendor Program, managed by Apexus, and  the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers in maximizing the benefits of 340B Drug Pricing Program and Prime Vendor Program discounts.  The two organizations are working together to […]

Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …

Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R … FOXBusiness “Orphan drug exclusivity confirms Octapharma’s decision to focus exclusively on the treatment of von Willebrand patients. Wilate has a combination of two … Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …      

Bayer is now accepting internship applications for the 2010 Bayer Hemophilia Leadership Development Program

The Bayer Hemophilia Leadership Development Program was developed with input from several members of the hemophilia community who saw a need for a program to develop future leaders in the bleeding disorders community. With their support, Bayer HealthCare Pharmaceuticals created an eight-week, paid summer internship at Bayer HealthCare’s U.S. Headquarters in Wayne, New Jersey. During […]

TAKE ACTION TODAY

Amy Maeder is a mother of two teenagers with severe hemophilia.  Amy is very passionate about improving the lives of her sons and the bleeding disorders community.  Amy, along with HFA encourages you to TAKE ACTION! Call or write your person in congress TODAY!

Family_child_with_bleedingdisorder

Any Port In A Storm

The Cleghorn family shares their story of having a young child with hemophilia.  They talk about prophylaxis treatment and transitioning from a portacath to to a vein.

HFA’s VOICES Campaign: VOICES from the Community

What do the Cleghorn’s, Laveane Lovelady, and Barry Haarde have in common?  Their stories are featured on HFA’s VOICES page.  The Cleghorn’s video clip highlights their son’s life from the very beginning.  Barry shares a story that many Blood Brothers could relate to.  Laveane talks about being diagnosed with mild Hemophilia A after the birth […]

Press Release: HFA Voices Blood Safety Concerns

FOR IMMEDIATE RELEASE:   December 10, 2009 Washington, DC:  The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. The blood is distilled […]

Press Release: HFA Recently Approved for NORD Membership

FOR IMMEDIATE RELEASE:    December 10, 2009 Washington, DC:  The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership.  One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues.  Certain standards and requirements must be met […]

Page 62 of 66« FirstPrevious57585960616263646566

Assisting and Advocating for the Bleeding Disorders Community