Community Member Corey Dubin is cited in the NY Times regarding blood plasma
NEWS RELEASE: Donation represents more than 40 million international units to the WFH (Montreal, December 2, 2009): As part of its continued commitment to hemophilia care around the world, Wyeth, now a part of Pfizer, has pledged more than 40 million international units (IUs) of factor concentrates to the World Federation of Hemophilia (WFH). This […]
Barry has hemophilia, HIV, and hepatitis C. He discusses the realities of being diagnosed HIV positive as a teenager and the many challenges he has faced throughout his life. Barry hopes by sharing his story he will empower others to share theirs.
Features: Terry Lamb, Karl Weixler, Tera Griffith & Tye Cowans. These four individuals share what life is like being a part of the bleeding disorders community.
1st Person with Hemophilia Reaches Mt. Rainier Summit to Raise Money for Inner-city Youth and International Bleeding Disorder Assistance Jeff Salantai
News Release Cincinnati, Ohio (November 9, 2009) — On August 5, 2009, two BioRx employees, Jeff Salantai and Eric Hill, began hiking to the summit of Mt. Rainier. They successfully reached the 14,410-foot summit on August 6. Hill says, “We hoped to reach one of the largest peaks in the U.S., and we achieved […]
Guidance for Industry: Use of Nucleic Acid Tests to Reduce the Risk of Transmission of West Nile Virus from Donors of Whole Blood and Blood Components Intended for Transfusion (PDF – 68KB)
The Hemophilia Federation of America congratulates and applauds the good works of Barbara Dittrich, Executive Director of Snappin’Ministries for becoming one of 3 semi-finalist for the The Hope Award. Barbara started the support group when her son Charlie was born in 2002 with Hempohilia. We wish her all the best with her ministry and look forward […]
Derick Stace-Naughton, a young man with von Willebrand’s Disease, started the group “Students for the Awareness of Bleeding Disorders.” Derick wants YOU to urge your member of congress to co-sponsor H.Con Res.147. H.Con.Res.147 promotes screening for vWD.
FOR IMMEDIATE RELEASE: October 20, 2009 Washington, DC: The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009. The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders community to reach their full potential through role […]
“One Man’s Story” By John Jarratt, M. Ed., L.P.C. Download John’s Story It is my hope that the new millennium will bring about a better understanding of hemophilia and bleeding disorders, along with an improved relationship and collaboration with consumers, chapters, foundations, hemophilia treatment centers, clinics, private practitioners, emergency room personnel, national organizations, and industry. […]
Assisting and Advocating for the Bleeding Disorders Community