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HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-CSL Behring offers $10,000 in support of the scholarships

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-Baxter offers $15,000 in support of scholarships

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

Community members take action to self-advocate and petition FDA for change!

Theresa Toigo, RPh, MBA Director Office of Special Health Issues Food and Drug Administration (FDA) 5600 Fishers Lane HF-12, Room 9-49 Rockville, MD 20857 Theresa.Toigo@fda.hhs.gov   Dear Ms. Toigo,   We are people with Hemophilia and their supporters.   We recognize and appreciate the recent FDA publication of rules to clarify and expand the process […]

PRESS RELEASE: HFA WELCOMES NEW INTERN Amanda Winchester

FOR IMMEDIATE RELEASE: September 8, 2009 Washington, DC – Effective August 24, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Amanda Winchester, Intern.   Ms. Winchester’s primary responsibility is Helping Hands Coordinator. Helping Hands is a program for individuals with hemophilia and von Willebrand disease that provides emergent financial relief […]

PRESS RELEASE: HFA AWARDED CDC COOPERATIVE AGREEMENT FOR FIT FACTOR PROGRAM

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC, has been awarded a five-year cooperative agreement from the Centers for Disease Control and Prevention (CDC).  The award supports a program aimed at promoting physical activity and maintaining a healthy weight in individuals with hemophilia.  Proper […]

PRESS RELEASE: HFA AWARDED CDC COOPERATIVE AGREEMENT FOR BLOOD BROTHERHOOD PROGRAM

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC has been awarded funding for a cooperative agreement from the Centers for Disease Control and Prevention (CDC).  The award, totaling $289,000 per year, supports a program aimed at providing social support, health information and skills to […]

Keeping Blood Transfusions Safe: FDA's Multi-layered Protections for Donated Blood

Vaccines, Blood & Biologics Keeping the United States blood supply the world’s safest is the ultimate responsibility of the nation’s more than 3,000 blood establishments, which collect and process 14 million units of whole blood donated by volunteers each year. The Food and Drug Administration, however, has the vital role of ensuring that the 3.5 […]

Even with health insurance, Texans in high-risk pool struggle

Marshall News Messenger – Marshall,TX,USA Christian Rodriguez, a 22-year-old college student in Spring who has hemophilia, a blood–clotting disorder, expects to reach the $2 million lifetime maximum …

Announcing the formation of a Hemophilia HIV/AIDS National Memorial

Announcing the formation of a Hemophilia HIV/AIDS National Memorial Release date:   Immediate                       contact:               MARY LOU MURPHY      781.444.8672 Terry MacNeil                         978.937.9857   A national memorial fund has been established to honor those who have lost their lives to Hepatitis C and HIV/AIDS as a result of tainted blood products in the […]

September IS Pain Awareness Month

Greetings: September is Pain Awareness Month and the American Pain Foundation invites you to join us in sounding the alarm in communities across the country about the barriers to accessing appropriate and effective pain management and the desperate need for better pain care. This year’s campaign, Conquering Pain Together, includes a first National Day of […]

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