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Terry Lamb is a Lion of Exercise

Having hemophilia doesn’t mean you or your child must live a sedentary life or be cut off from good opportunities for becoming fit. Just ask Terry Lamb of Virginia. This 59-year-old supporter of the FitFactor program lifts weights 6 days a week and swims on his day off. Back when Terry was born, there was […]

Gears for Good – Bike Ride Fundraiser

Gears for Good is a bike ride to raise funds and support for Helping Hands. This campaign blends our belief in health and wellness with a critical program that desperately needs additional funding. Watch this video to understand why Gears for Good is important.  

Medicare Enrollment Period Ends December 7, 2011

Medicare annual open enrollment ends in less than 1 week.  Medicare beneficiaries who do not have a Part D plan can enroll in one, and those who do have Part D coverage can change plans.  Beneficiaries can also return to traditional Medicare from a Medicare Advantage (MA) plan, enroll in an MA plan, or change […]

NIH: World AIDS Day

NIH Statement on World AIDS Day 2011 Anthony S. Fauci, M.D., Director, National Institute of Allergy and Infectious Diseases Jack Whitescarver, Ph.D., Director, NIH Office of AIDS Research Francis S. Collins, M.D., Ph.D., Director, NIH Direct Link to NIH statement This year, we commemorate World AIDS Day during the 30th year since the first reported […]

Access to HCV Therapy

Next Push – Advanced Therapy Our Citizen Petition to the FDA in 2009 (with amendment), asked for recognition of the HCV crisis in our community and it requested the earliest possible access to advanced HCV therapies.  We have made substantial progress in moving regulatory policy toward appropriate urgency. However, as advocates and patients, we are […]


Beating the Bugs

 For most of us, fall and winter means less time outdoors in the fresh air and more time spent in close quarters with those that we work, play, learn and live with.  It is a great opportunity for cold and flu viruses to work their way from one person to the next. While we all […]


Avoid Overeating During the Holidays

The holidays are upon us, and staying healthy can sometimes be a challenge. Food is a huge part of American culture, heritage and family traditions, and it can be difficult to push back from the table at many holiday celebrations. For many of us, food represents comfort and the smell of turkey triggers numerous joyous […]

food pyramid

Have you heard about MyPlate?

The MyPlate icon also directs individuals to a website – – which contains resources and tools about more specific information about what and how much to eat.

Anti-Inhibitor Prophylaxis

Anti-Inhibitor Coagulant Complex Prophylaxis in Hemophilia with Inhibitors Link to article Cindy Leissinger, M.D., Alessandro Gringeri, M.D., Bülent Antmen, M.D., Erik Berntorp, M.D., Chiara Biasoli, M.D., Shannon Carpenter, M.D., Paolo Cortesi, M.Sc., Hyejin Jo, M.S., Kaan Kavakli, M.D., Riitta Lassila, M.D., Massimo Morfini, M.D., Claude Négrier, M.D., Angiola Rocino, M.D., Wolfgang Schramm, M.D., Margit Serban, […]


Local Farmer’s Markets that accept WIC/Food Stamps

Farmer’s Markets that support the use of food stamps/WIC:   Connecticut – Wholesome Wave (multiple markets)   The Food Trust – Philadelphia, PA   New York – NY Farmers Market   Washington, DC – Fresh Markets   Washington – Washington State Farmers Market Association   Wholesome Wave Partners – California, […]

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