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2006: A Legacy of Tainted Blood

Title: A Legacy of Tainted Blood By: Steve Sternberg Date: July 11, 2006 Source: USA Today Like many young men, Joshua Lunior is searching for his dream girl. He knows she won’t be easy to find, because Lunior, 24, comes with some challenging baggage. He belongs to an all-but-forgotten generation of 10,000 people with hemophilia who contracted […]


1998: Ricky Ray Relief Fund Act Passed

 *Photos courtesy of Corey Dubin Ricky Ray Hemophilia Relief Fund Act of 1998 PUBLIC LAW 105–369—NOV. 12, 1998 [H.R. 1023] To provide for compassionate payments with regard to individuals with blood- clotting disorders, such as hemophilia, who contracted human immunodeficiency virus due to contaminated antihemophilic factor, and for other purposes. Be it enacted by the […]

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Mid-Late 1990s: A Period of Action for Hemophilia Community

_____________________________________ Title: At Annual Meeting, Hoping To Heal Hemophiliacs’ Rift Subtitle: Some Want Retribution For Aids; Others Want To Move On. By: Donna Shaw, INQUIRER STAFF WRITER Date: October 12, 1995 Source: The Philadelphia Inquirer There is much that keeps Michael Carlin alive in the memories of his family. There is his poetry. His music. […]

Mid-Late 1990s_Hemophilia Action

1990s—A Time for Action

Dateline Federation Fall 1997       Volume 3.1 Hemophilia Federation Launches First Annual Symposium The weekend of September 5 – 7, 1997 was filled with entertainment, education, and an epicurean world tour for members of our community who gathered for the Federation’s first annual educational symposium at the Hyatt Regency Hotel in downtown Houston, […]


1990s—Painful Questions and Heartbreaking Answers

_____ Title: Hemophilia Foundation Chief Knew Of Aids Risk In 1984 By: Donna Shaw Date: November 3, 1994 Source: The Philadelphia Inquirer Blood-clotting drugs so improved his life that their possible contamination with the AIDS virus in the early 1980s was “an irrelevancy,” according to Donald S. Goldman, a former president and board chairman of the National Hemophilia Foundation. […]

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1994- First Issue of Dateline Federation Published

Note: This is a transcribed copy of the first issue of our quarterly newsletter, Dateline Federation. A scanned .pdf of the issue is located here. New Kid on the Block The Hemophilia Federation Takes its Place in the Community Many, many times over the past eighteen months, we have been asked the proverbial question – just […]

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1992- American Hemophilia/HIV Peer Association

ACTION NOW! American H/HIV Peer Association Volume 1, Number 1                                                                                           […]

1983—CDC Determines that AIDS is Spread Through Infected Blood

[glossary_exclude]Title: Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations Date: March 4, 1983 Source: Centers for Disease Control Morbidity and Mortality Weekly Report Since June 1981, over 1,200 cases of acquired immune deficiency syndrome (AIDS) have been reported to CDC from 34 states, the District of Columbia, and 15 countries. Reported cases of AIDS include persons […]


1989- COTT and the HIV/Peer Association Formed

In the late 1980s, many in the hemophilia community felt they were not getting the answers they sought. The Committee of Ten Thousand (COTT) and the Hemophilia-HIV/Peer Association were formed to demand more information and transparency while holding accountable those who allowed the HIV/AIDS epidemic to spread so widely through the community. Below is a […]


1985- Product Recalls Continue, Remain Cumbersome

December 13, 1985 AIDS UPDATE Medical Bulletin #34 Chapter Advisory #39 Factor IX Product Withdrawal Announced  On Friday, November 29, 1985, Hyland Therapeutics Division of Travenol Laboratories, Inc., initiated a voluntary market withdrawal of one lot of Factor IX Complex, PROPLEX (not heat treated) in the United States. The Withdrawal was based on identification of […]

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