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Dear Addy: New Years Resolution

Dear Addy, My new year’s resolution is to be a stronger advocate for the bleeding disorders community. How do I reach people and where can I find information to share? Signed, Want to Be the Change Dear Change, You came to the right place! HFA has several resources available for people to increase their awareness […]

Industry News

Octapharma Presents Phase III NuProtect Data at 2016 ASH Annual Meeting

______________________________________________________________________________ Note: The following is edited from a press release from Octapharma. Read the full press release in it’s entirety here. At the recent American Society of Hematology (ASH) Annual Meeting, Octapharma presented interim data from the ongoing phase 3 study, NuProtect. The NuProtect Study examines the immunogenicity, efficacy and safety of treatment with human cell-line derived recombinant […]

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Infusing Love: Nuestra Responsabilidad Como Padres

Sin darnos cuenta muchas veces queremos “ayudarles” y hacemos las cosas por ellos. Ahh que mucha paciencia tenemos que tener.   Debemos ser conscientes de que en el futuro ellos necesitan hacer las cosas por si solos. Debemos comenzar a temprana edad, a darles responsabilidades de acuerdo a sus capacidades y edades. Pero, la etapa de […]

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HFA Awards 2016 Educational Scholarships

Each year, HFA awards scholarships to promising students in the bleeding disorders community. A total of four scholarships ranging from $2,000 to $4,000 is awarded in these three categories: Educational Scholarship Two educational scholarships were awarded in the amount of $2,000 each to students with a bleeding disorder who were seeking a post-secondary education from […]

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Infusing Love: Growing Up So Fast

  This week’s Infusing Love entry is a poem co-written by our longtime blogger, Kari, and her daughter, Scarlett. I’m learning to be safer, watch my step, and stay out of harms way. Each day a new lesson, on how to exercise and how to play! I might start off feeling intimidated, scared or shy. […]

Dear Addy: Giving Back

Dear Addy, I want to give back this holiday season, but I’m not sure how. Can you recommend ways to be more involved in my community? Signed, Inspired to Serve _____________________________________________________________________________________________________________________________________________________________ Dear Inspired, The holiday season is a good time to reflect on giving to a cause or serving those in need. There are many […]

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Infusing Love: Taking a Stand

  Every day we advocate for our children and ourselves. Our advocacy ranges on a small scale such as requesting a drink refill when we need one at restaurant to advocating for our children on a larger scale when requesting a doctor to infuse your child before any sort of x-ray when in an emergency […]

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FitFactor: How Does Your List of Healthy Foods Compare with a Nutritionist’s?

Do you feel that your views of what’s healthy align with the views of the experts? The New York Times published an interesting article a few months ago about public perception of what is “healthy” and how these have changed over time. The study also highlighted what foods nutritionists believe to be the healthiest (and […]

Infusing Love: A Boy & His Dog

Thomas had a stuffed animal when he was little. “Dog*” went through a lot with us. He was a constant companion, friend and source of comfort. Dog stayed in the hospital, went to clinic visits and traveled with us. We would literally pack factor for an ER visit with one hand and grab Dog with […]

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Dear Addy: Formularies

Dear Addy, I keep hearing the terms formulary and preferred drug list. What do they mean and should I be worried if my current insurance plan has one? What about my friends that have Medicaid? Signed, Informed Consumer ____________________________________________________________________________________ Dear Consumer, A formulary is a list of prescriptions drugs that are covered by a particular […]

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Assisting and Advocating for the Bleeding Disorders Community