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Symposium 2013 girls cooking

Symposium 2013 Gets Kids Cooking Healthy

HFA’s Symposium provides an opportunity for children with bleeding disorders and their siblings to come together for fun and play.  There is also opportunity for the FitFactor team to provide education and fun regarding healthy eating and physical activity.  At this year’s Symposium each family of a 5-12 year old was given a complimentary copy […]

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Honoring All Moms, Past & Present

Had I been the Matthew my mother was expecting to give birth to, my life would have been astronomically different. I was born right around the time the first factor concentrates to treat hemophilia were available for home use. Had I been born a male rather than a female, I probably would have been diagnosed […]

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I. Am. Exhausted. (…and Doing the Best I Can)

It’s one o’clock in the morning and I just finished infusing Thomas for the seventh time in twenty-eight hours. We spent four of those hours in the emergency room for pain management and I’ve heard, “Mommy!” approximately 635 times today.  I. Am. Exhausted. I had to keep Thomas home from school due to a nasty […]

CSL Behring Receives FDA Approval of Kcentra™

King of Prussia, PA — CSL Behring announced today that the U.S. Food and Drug Administration (FDA) approved Kcentra™ (Prothrombin Complex Concentrate [Human]), the first non-activated 4-factor prothrombin complex concentrate (PCC) for the urgent reversal of acquired coagulation factor deficiency induced by vitamin K antagonist (e.g., warfarin) therapy in adult patients with acute major bleeding. […]

Moms Blog_Symposium 2012

It’s Time for a Family Reunion

One of the things that surprised me most about joining the bleeding disorders community was the sense of family.  Thomas’s diagnosis was the first in our family history (although we’d later find out I’m a carrier), so the shock of hemophilia was hard to shake, but the open arms we met made it a bit […]

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Medicaid Expansion in Your State

  The Medicaid program is a federal and state partnership to provide health insurance for those who are financially and medically needy. It is a vital safety net in our health care system. Federal law sets a baseline of eligibility categories for states to follow, but states have the flexibility to cover above that baseline […]

Mom's Blog_World Hemophilia Day

A World Away; But That’s Not So Far

My fellow hemo moms are like my sisters. They are the women I can call, text, or email when I need an outlet for my fears and frustrations.  There seems to be an instant sisterhood amongst hemo moms as soon as you connect a group of them – whether that connection takes place in person […]

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Cookie Theft Leads to Laughter

Most moms of children with bleeding disorders have a sick and twisted sense of humor. Many of us use humor as a coping mechanism. Honestly, I don’t know how I could have managed all these years without many moments of  levity and giggles. For instance, one of the scariest potential bleeds Thomas ever had is […]

Mom's Normalcy

Normal is Boring

A few months ago, Thomas was just getting over a foot bleed, ironically caused from snow boots that were too tight. (I mean, really?  Snow boots?) After a week of not being able to do his nightly chore of taking out the kitchen trash, I declared his foot healed enough to take out the garbage. […]

Hemophilia Awareness Month Graphic

Raising Awareness while Raising Children

I can’t say that I was “aware” of hemophilia before Thomas was born. Since there was no family history, the only thing I could vaguely recall about hemophilia was that Ryan White had it. My knowledge beyond that was slim to none. In the days right after the diagnosis, I didn’t want to look at […]

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