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Press Release: HFA Begins Accepting Applications for Items Program

Link to PDF of HFA Begins Accepting Applications for Items Program HFA Begins Accepting Applications for Items Program  Items Program Reimburses for Medically Necessary Items FOR IMMEDIATE RELEASE  April 3, 2012 Washington, D.C. – Today, Hemophilia Federation of America’s (HFA) Helping Hands Emergency Assistance Program began taking applicants for the Bleeding Disorder Items Program — a […]

Press Release: 2nd Anniversary of Affordable Care Act (ACA)

Link to PDF of 2nd Anniversary of Affordable Care Act HFA Celebrates 2nd Anniversary of Affordable Care Act FOR IMMEDIATE RELEASE March 23rd, 2012 Washington, D.C. – Today marks the two-year anniversary of the passage of the Affordable Care Act, landmark legislation to reform our health care system in ways that lower costs and expand […]

Press Release: HFA Recognizes Rare Disease Day

Link to PDF of Rare Disease Day Press Release Hemophilia Federation of America Recognizes Rare Disease Day February 29th, 2012 Marks the Fifth International Rare Disease Day Washington, D.C. – The Hemophilia Federation of America (HFA) will join the National Organization for Rare Disorders (NORD), and others around the world in observing Rare Disease Day […]

Forbes: The 10 Most Expensive Common Medical Conditions

Over the course of a year two out of every 1,000 people will rack up $100,000 or more in medical bills. These are the “high cost patients” who make insurance premiums go up and bedevil policy makers. These are people who are really sick. The conventional wisdom is that with better prevention, wellness, care-coordination, insurance […]

HFA Receives $7,250 United Way Grant

Official Press Release Funding Will Help Support FitFactor Initiatives Washington, D.C. – The Hemophilia Federation of America (HFA) today announced that the United Way of The National Capital Area has issued a $7,250 grant to help support their FitFactor program in collaboration with one of their local member affiliate chapters, the Hemophilia Foundation of Maryland […]

HFA Press Release: New Staff

Link to PDF of New Staff Press Release HFA Office Welcomes New Additions to Staff Washington, D.C. – The Hemophilia Federation of America (HFA), is pleased to announce four new additions to their staff: Jane Cavanaugh Smith, Matthew Landseadel, Pat Brown, and Richard Pezzillo. “Despite the difficult economy, HFA continues to grow and build as […]

TX Bleeding Disorders Advisory

HFA Board Member Lew Collins has been appointed to the Texas State Bleeding Disorders Advisory Council. According to the Texas Department of State Health Services (DSHS) this advisory council will oversee: 1) public use data, outcome data, and other information submitted to or collected by DSHS related to hemophilia or other bleeding or clotting disorders; […]

World AIDS Day

Today, December 1 is observed as World Aids Day. Established in 1988 by the World Health Organization, this day is established to ensure renewed and continual attention to the threat posed by HIV-AIDS. It is estimated by the Centers for Disease and Control that over 1 million people in the United States are currently living […]

Access to HCV Therapy

Next Push – Advanced Therapy Our Citizen Petition to the FDA in 2009 (with amendment), asked for recognition of the HCV crisis in our community and it requested the earliest possible access to advanced HCV therapies.  We have made substantial progress in moving regulatory policy toward appropriate urgency. However, as advocates and patients, we are […]

Get Out & Go: Partner of Gears for Good

Gears For Good Fall Newsletter

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Assisting and Advocating for the Bleeding Disorders Community