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Dear Addy: Marketplace Enrollment

Dear Addy, I am self-employed and need health insurance. When can I enroll in the Marketplace plans and when will this coverage start? ~Self-Employed  _____________________ Dear Self-Employed, You can apply for health insurance on the Health Insurance Marketplace when open enrollment starts on October 1, 2013. Coverage under Marketplace plans starts as soon as January […]

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A Family’s Struggle with vWD

I am a single mom of three; all with special needs. My son has severe speech problems, my youngest daughter has mild von Willebrands, and oldest daughter has severe von Willebrands, food allergies, and experiences seizures. My daughter’s frequent and heavy nose bleeds lead doctors to perform four surgeries on her nose. My daughter was not responding […]

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Prepared for Anything

By Maryann May Being prepared took on a new meaning after having Max. It’s frightening and frustrating to know your child is hurt, but the key is to remain calm. Whether you’re on a trip or stranded in your own home, it never solves anything to panic. For me, the hardest part of adjusting to […]

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Dear Addy: Individual Mandate

Dear Addy, I just turned 27 and have lots of debt. Instead of purchasing health insurance, I would rather use the money I make to pay down what I owe. I have mild hemophilia and I have not had a bleed in a year. Do I still need to have health insurance under the new […]

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Guilty As Charged

Snakes can be poisonous. I have tried desperately to avoid them since I was about eight years old and was innocently climbing a tree and one slithered up next to me.  I don’t always succeed. Guilt is also poisonous.  I have tried desperately to avoid it since Thomas was born. I don’t always succeed. This […]

Study Finds H.R. 460 Will Have Negligible Impact on Insurance Premiums

Washington, DC – A bill to protect access to medically necessary treatments for patients with chronic, disabling, and life-threatening conditions would not significantly increase medical insurance premiums according to a study released today by the Coalition for Accessible Treatments. The Coalition, composed of professional medical associations and patient organizations, commissioned the study, which was conducted […]

We’re All In This Together

 By Sonji Wilkes I never could have imagined that hearing the words, “Thomas has severe hemophilia,” would equate to being thrust into a world of inspirational people and unexpected acts of kindness.  When Thomas was diagnosed and the doctor asked, “Do you have a good insurance plan?” my mind immediately focused on the challenges we […]

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Dear Addy: Essential Health Benefits

Dear Addy, I am worried that my employer will stop offering health insurance to save money and send me to the Marketplace to get coverage. Is this true and, if so, should I be worried about finding good coverage? Signed, Worried & Seeking Truth ________________________ Dear Worried, The answer to your first question is maybe, […]

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Nia Technique: Working IN by Working OUT

If you have been hanging out with HFA’s FitFactor  for very long, by now you know their motto, “healthy bodies bleed less”… and it’s TRUE! Doctors specializing in bleeding disorders stress that consistent exercise can prevent or reduce bleeding by strengthening muscles and vulnerable joints for hemophiliacs of all ages.  In fact, whether you have […]

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A Long Hospital Stay

We are all in this Together… “Thank you to all that make the Helping Hands program possible. Thank you for helping our family.” My youngest son has severe hemophilia A. He bleeds internally very frequently and lives in a lot of pain.  He misses 5-7 days of school each month because of his constant bleeds, […]

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Assisting and Advocating for the Bleeding Disorders Community