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Nia dance group Symposium 2013

Nia Dance Gets Us Moving at Symposium 2013

The FitFactor program encourages physical activity for individuals with bleeding disorders to strengthen muscles and joints and help reduce the frequency of bleeding episodes.  We understand that choosing an exercise routine is very personal and that a “one size fits all” philosophy just doesn’t apply when choosing a physical activity program that is right for […]

Mom's Blog_Superhero

Taking Off the Super Woman Cape

Inspirational quotes appear in lots of different places in our lives: on social media, public service announcements, classroom posters, the bulletin board in the break room at work.  Prior to becoming a mom, I rarely gave them a second thought – they were simply filler and not something I spent much time pondering.  As I […]

HMD

The Best Job You’ll Never Get (Monetary) Payment For

Oprah Winfrey has been quoted, “I always say moms have the toughest job in the world.”  Everybody knows Oprah is right more often than not. What would the job description for a mom with a child of a bleeding disorder look like?  I think maybe it would be something along these lines: Job Title: Mama […]

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Poorly Understood: Women and Bleeding Disorders

While bleeding disorders like hemophilia and von Willebrand Disease (vWD) affect men and women, these conditions present unique issues for women because of heavy or abnormal bleeding during menstrual cycles and after childbirth. Many areas crucial to the diagnosis and treatment of bleeding disorders in girls and women are poorly understood. According to the CDC, […]

Symposium 2013 girls cooking

Symposium 2013 Gets Kids Cooking Healthy

HFA’s Symposium provides an opportunity for children with bleeding disorders and their siblings to come together for fun and play.  There is also opportunity for the FitFactor team to provide education and fun regarding healthy eating and physical activity.  At this year’s Symposium each family of a 5-12 year old was given a complimentary copy […]

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Honoring All Moms, Past & Present

Had I been the Matthew my mother was expecting to give birth to, my life would have been astronomically different. I was born right around the time the first factor concentrates to treat hemophilia were available for home use. Had I been born a male rather than a female, I probably would have been diagnosed […]

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I. Am. Exhausted. (…and Doing the Best I Can)

It’s one o’clock in the morning and I just finished infusing Thomas for the seventh time in twenty-eight hours. We spent four of those hours in the emergency room for pain management and I’ve heard, “Mommy!” approximately 635 times today.  I. Am. Exhausted. I had to keep Thomas home from school due to a nasty […]

CSL Behring Receives FDA Approval of Kcentra™

King of Prussia, PA — CSL Behring announced today that the U.S. Food and Drug Administration (FDA) approved Kcentra™ (Prothrombin Complex Concentrate [Human]), the first non-activated 4-factor prothrombin complex concentrate (PCC) for the urgent reversal of acquired coagulation factor deficiency induced by vitamin K antagonist (e.g., warfarin) therapy in adult patients with acute major bleeding. […]

Moms Blog_Symposium 2012

It’s Time for a Family Reunion

One of the things that surprised me most about joining the bleeding disorders community was the sense of family.  Thomas’s diagnosis was the first in our family history (although we’d later find out I’m a carrier), so the shock of hemophilia was hard to shake, but the open arms we met made it a bit […]

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Medicaid Expansion in Your State

  The Medicaid program is a federal and state partnership to provide health insurance for those who are financially and medically needy. It is a vital safety net in our health care system. Federal law sets a baseline of eligibility categories for states to follow, but states have the flexibility to cover above that baseline […]

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Assisting and Advocating for the Bleeding Disorders Community