Receive Our Newsletter

kerri_kids_hospital.jpg

Infusing Love: Six Lessons Learned

  A lot has changed since my daughter was diagnosed with a platelet storage pool deficiency in 2011. Initially, there was little information and case studies to look to for reassurance. Not having a treatment plan led to many fears, doubts, and unknowns and wondering if I could make it through another injury or trip […]

kimberly_divide.jpg

Infusing Love: The Right Time

  There is this one conversation I’ve had repeatedly with dozens of parents over the past ten years. It always revolves around our desire to be protective and shelter our kids. A child’s early years should feel safe. However, we know they cannot stay innocent forever. We do want them to grow up to be […]

x-country_skiing_FF.jpg

7 Ways to Stay Active in Winter

We all know that working out in the winter can feel like an impossible feat at times. However, once you start making it part of your regular routine, it’ll turn into a simple task and become easier to sustain through other parts of year when the weather isn’t so harsh. Keeping your body healthy and […]

OOPs_dear_addy[1]

Dear Addy: Out-of-Pocket Expenses

  Dear Addy, I just got my daughter’s January EOB, and I realized that my family is now responsible for up to $14,300 in out-of-pocket (OOP) expenses. Why did this amount go up $600, even though we kept our same insurance? And how can I afford this?!? HELP! Signed, Anxious about OOPs Dear Anxious, High […]

Infusing Love: Bleeds Hurt

  A couple of months ago, my 8th grade son with hemophilia had “Future Bruin” night at the high school he will be attending next year. Any time we have to think about making a school move with him it induces anxiety for me as I start thinking about the process we’ll have to go […]

Millennials Get Busy- Advocacy for Young Adults

By Sarah Shinkman Learning how to advocate is an important life skill at any age. Whether you are practicing personal, peer, or group advocacy, you have the power to influence decisions that may affect you and others. HFA’s final Young Adult Hangout of 2016 featured two community advocates and a health insurance overview by Erin […]

carrie_son_ADORABLE.jpg

Infusing Love: I’ll Be Ready

Every day, I am reminded of how quickly time passes. My kids will only be little for a very short period of time. As working parents, we always tend to wish the days away in order to get to the weekends when we can take a deep breath, relax, and prep for another busy week […]

okay_outreach[1]

Okay, So What Can We Do?

By Lori Long and Sarah Shinkman “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” -Margaret Mead To find an example of the type of group Margaret Mead speaks about in her famous quote, look no further than our bleeding disorders community. […]

medical_news_600x600

CDC Describes New Method to Detect Specific Antibodies in Inhibitor Development

Note: The following is an abridged form of an article from the Centers for Disease Control and Prevention(CDC). The original full-length of the article can be read here. The Centers for Disease Control and Prevention (CDC), along with researchers from the Hemophilia Inhibitor Research Study (HIRS), have recently published two articles in The Journal of Thrombosis and Haemostasis. The articles describe […]

stressed_out_dear_addy.jpg

Dear Addy: Self-care

Dear Addy, With the holidays behind us, I’m trying to focus on taking care of myself in the new year. However, I struggle to do this between family, work, and social obligations. Can you provide some tips on self-care so I can be a better advocate for myself and my family? Signed, Stressed Out Dear […]

Page 7 of 68« FirstPrevious3456789101112NextLast »

Assisting and Advocating for the Bleeding Disorders Community