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Joint Statement on Addressing the MSM Blood Ban by Groups Representing People Living with Hemophilia, Gay Men and People Living with HIV/AIDS

The Department of  Health & Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men who have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood.  Click here for the Press Release.

HFA Press Release: Facebook Fans Bring Community Friends Together

FOR IMMEDIATE RELEASE: Wednesday, March 10, 2010 Washington, D.C.:  There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact.  At the Hemophilia Federation of America (HFA), this […]

Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall

Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets Exel/Exelint “Securetouch+” Safety Huber Infusion Sets Audience: Hospital Risk Managers, Surgical Service personnel FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro Medical Corporation for Exelint International Corporation due to […]

Press Release: HFA Voices Blood Safety Concerns

FOR IMMEDIATE RELEASE:   December 10, 2009 Washington, DC:  The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. The blood is distilled […]

Press Release: HFA Recently Approved for NORD Membership

FOR IMMEDIATE RELEASE:    December 10, 2009 Washington, DC:  The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership.  One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues.  Certain standards and requirements must be met […]


FOR IMMEDIATE RELEASE:     October 20, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009.  The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders community to reach their  full potential through role […]

Advocates in Action: The Forbes’ Family Meets President Obama

FOR IMMEDIATE RELEASE: October 16, 2009 Washington, DC:   Imagine having the opportunity to visit the Oval Office and meet the President of the United States.  This opportunity became a reality for 12-year old Emmanuel Forbes with severe hemophilia complicated by an inhibitor, his five siblings and parents, Michael and Jane Forbes. Emmanuel was granted his […]

Leland Smith


FOR IMMEDIATE RELEASE:    September 28, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) launched its first online community social networking medium in July 2009.  HFA’s official Facebook site is designed to make connections and build relationships with community members across the country. On September 19, 2009, just two months after the page was […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-CSL Behring offers $10,000 in support of the scholarships

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

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