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Infusing Love: Finding His Voice

    Recently a friend shared a quote that really resonated with me: “A negative mind will never give you a positive life.” I recited that quote at least one hundred times the day she shared it. I even had to find a pretty Google image of the quote, print it off, and hang it […]

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Caregiver Heroes: Kelly

In honor of National Caregiver Month, we’ll be featuring “Caregiver Heroes” throughout the month of November. While all in the bleeding disorders community are heroes in their own special ways, these folks are being given a special shout-out for the ways they take care of their loved ones and themselves. Meet Kelly from Nevada, who […]

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Infusing Love: Goodbye, My Friend

Dear Port: Over the past five years you were a big part of how well I did infusing my son, Laithan. As much as he would fight me during infusions by moving around, I knew that I could always count on you to work. Don’t blame yourself for having to be removed! In five years […]

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FitFactor: The Benefits of Hitting the Weight Room

Weight training plays an important role in keeping your body fit and healthy. It’s a great way for people with bleeding disorders to strengthen muscles and joints and by doing so, reduce the frequency and severity of bleeds. We spoke with Michael Zolotnitsky, Doctor of Physical Therapy, about the benefits of weight training and his […]

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Dear Addy: Joint Health

  Dear Addy, I’m 27 years old with severe hemophilia B. I’m caring for myself and my joints, including infusing to prevent bleeds as much as possible. As you know, with time, joints just can’t move as freely. Is there anything I can do? Do you recommend any exercises that can improve movement? Signed, Achy […]

Infusing Love: Sisterly Bond

I adore the “On This Day” feature on Facebook. It is a wonderful way to look back at the past to see what has happened on any given day in past years. It often reminds me of those moments that may have slipped my mind in a blur of parenting madness over the last fifteen […]

Dateline: Ask the CDC – What’s von Willebrand Disease?

Erik von Willebrand, a Finnish physician, noticed several young girls in one family shared symptoms of a bleeding disorder. The year was 1924, and von Willebrand recognized that the girls’ symptoms were different from those of someone with hemophilia, a disease mostly affecting males. He called this new disease pseudohemophilia, or false hemophilia, but others […]

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Infusing Love: Stealing My Joy? Never!

  For over a year my family has lived like most everyone else in the world.  We get up, go to work and school, have fun, go on trips, eat and play….it’s all very good.  Our oldest son has gone away to college and our youngest is in the fifth grade. The blessing has been […]

Industry News

Prescription Benefit Program Changes for Recombinant Clotting Factor Product

  It has come to our attention that Helixate FS, a recombinant clotting factor product sold and distributed by CSL Behring, is being removed from prescription benefit programs for a limited number of patients using CVS/Caremark effective January 1, 2017. Patients currently using Helixate FS who have the “Advanced Control Formulary” plan with CVS/Caremark will have the […]

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Dear Addy: Project CALLS

Dear Addy, My insurance company is making it increasingly difficult to access the services and products I need to care for my bleeding disorder, which has led to delayed care. How can I report these issues? Signed, Frustrated __________________________________________________________________________________________________________________ Dear Frustrated, You are not alone in your concerns. In August 2015, HFA launched Project CALLS […]

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