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Bloomberg News: Merck Data a Potent Rival to Gilead’s Hepatitis C Pill

By: Drew Armstrong Merck & Co. (MRK)’s experimental hepatitis C pill produced clinical trial results positioning the drug as a strong competitor to a potential blockbuster therapy from Gilead Sciences Inc. (GILD) Merck’s two-drug combination once-a-day pill stopped the virus in 98 percent of newly treated patients with few major side effects, according to a […]

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CDC Webinar: New Challenges in Hemophilia

On Thursday, April 3, 2014 the Centers for Disease (CDC) control hosted an informative and important webinar about new challenges facing the hemophilia community. If you missed it, take a look at Dr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles, presentation slides about about the impact of: overweight and […]

HIV-Infected Men and Heart Disease

Many individuals with hemophilia are living longer, healthier lives due in large part to advances in treatment, access to treatment and knowledge of self care strategies.  Because they are living longer, it is so important for people with hemophilia and other bleeding disorders to make healthy lifestyle choices especially related to diet and exercise.  A nutritious diet and some form of  […]

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2000s: Living with a Bleeding Disorder

  In the early 2000’s, the divide in the hemophilia community between the HIV/AIDS-era families, post-heat treated, and recombinant factor using families slowly begins to heal. The community sees a resurgence in families coming together through camps, local, and national meetings. The term “hemophilia” begins to be replaced by the term “bleeding disorders” to acknowledge all […]

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1998: Ricky Ray Relief Fund Act Passed

 *Photos courtesy of Corey Dubin Ricky Ray Hemophilia Relief Fund Act of 1998 PUBLIC LAW 105–369—NOV. 12, 1998 [H.R. 1023] To provide for compassionate payments with regard to individuals with blood- clotting disorders, such as hemophilia, who contracted human immunodeficiency virus due to contaminated antihemophilic factor, and for other purposes. Be it enacted by the […]

1995: A Turning Point for Hemophilia

*Articles courtesy of Barry Haarde  In 1995, a Committee of the Institute of Medicine (IOM), releases a report called, HIV and the Blood Supply: An Analysis of Crisis Decision Making, this report is a turning point for the hemophilia community. Click HERE to read the IOM report ________________________________________ Title: Blood Safety Changes Ordered Subtitle: They Include A […]

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1980’s: Hemophilia, HIV/AIDS, and Hepatitis C

In 1982, the Centers for Disease Control (CDC) reported the first case of HIV/AIDS among people with #hemophilia, and concerns began to grow that the blood supply was tainted. Despite warnings from the CDC, leaders in the hemophilia community encouraged patients to continue using clotting factor (more information below). In 1983, several manufacturers began the […]

1970s: Living with Hemophilia

Title: Doctor Claims 95% Accuracy in New Test for Hemophilia By: Unknown  Date: 1973 Source: Associate Press  A researcher says a new method has been developed that offers a 95% chance of spotting female carriers of hemophilia (bleeding disorders) as compared with only 25% accuracy with present ways. Hemophilia is a hereditary blood malady that strikes only men but […]

Mid-Late 1960’s: Hemophilia Treatment

Title: Hemophiliac Lifespans Grow By: Ellen Hale Date: Unknown Source: Gannett News Service New medical advances are letting people with hemophilia live longer and better than ever before, researchers say. But the success with the “bleeder’s disease” has brought on new problems few of them foresaw. Suddenly, they are finding they must treat not only the disease, but […]

1950’s-1960’s: Early Hemophilia Treatment Articles

Title: Bee Stings May Save Boy’s Life* By: Unknown  Source: St. Petersburg Times Date: May 19, 1957 A 16 year-old Clearwater boy is taking a deep interest in bees these days. They may be saving his life. It worries him that the ones who come to his aid must die in return. The youth is Jackie McAllister, […]

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Assisting and Advocating for the Bleeding Disorders Community