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Infusing Love: A Mom's View - A blog dedicated to mothers of children with bleeding disorders.
Mom's Blog_Camp 2

Proud Mom of an Alphabet Belcher

From the time Thomas was an infant, I had been told hemophilia camp was not to be missed.  Kids and adults alike told me how wonderful camp was for them and how it was their most anticipated week of the year.  There are over eighty summer or family camps for persons with bleeding disorders in […]

Mom's Blog_Explanation of Benefits

Affording to Bleed

I think we can all agree that factor is an expensive drug. The Explanation of Benefits (EOB’s) that arrive in the mail each month are horrifying to look at. The ones we get are on the far end of the “oh-my-goodness-that’s-a-lot-of-money” spectrum. And those are just the ones that include Thomas’s factor supply for scheduled […]

Mom's Blog_Siblings

Siblings: Unaffected, but certainly AFFECTED

  As a mom, the single hardest thing for me about hemophilia hasn’t been the unpredictability, or the pain, or the insurance, or the infusions.  The thing I struggle with and lose the most sleep over are my “unaffected” girls. I’ve got this hemophilia thing down – recognize the bleed, treat it. Rinse, repeat.  But […]

Thomas Wheelchair

That Almost Never Happens

                At the very first meeting we had at the Hemophilia Treatment Center (HTC) when Thomas was a week old, Nathan asked the HTC team, “Does the medicine ever stop working? Can you build up antibodies to it?” Not wanting to worry us and having a good track […]

Mom's Blog_Advocacy

The Truth About Advocacy

              Advocacy used to scare the devil out of me. I avoided anything that had to do with going to my state capitol or writing a letter to a legislator.  Advocacy sounded like downright torture and I didn’t want any part of it. A perspective change came in the […]

Sonji and Thomas

Earning My Mommy Medical Degree

                  Moms need a safe place to land sometimes. With that in mind, HFA is launching a blog dedicated to all things mom! In this safe spot, moms of a child with a bleeding disorder will be able to read stories and draw inspiration from like-minded (and similarly […]

Families_Keep Calm & Use Frozen Hash Browns

Welcome to Infusing Love: A Mom’s View

                Moms need a safe place to land sometimes. With that in mind, HFA is launching a blog dedicated to all things mom! In this safe spot, moms of a child with a bleeding disorder will be able to read stories and draw inspiration from like-minded (and similarly crazed) […]

Preview of Mom's Blog

Infusing Love: The Power of Unconditional Love

            My mother and grandmother always warned me, but I never understood it until I experienced it first hand.  I’m not even really sure it’s fair to say I felt it in the preceding nine months – (it was actually pretty hard to feel much of anything beyond all the morning […]

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Assisting and Advocating for the Bleeding Disorders Community