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Infusing Love: A Mom's View - A blog dedicated to mothers of children with bleeding disorders.
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Infusing Love: Isolated No More

Until recently my husband and I didn’t realize how alone Chris felt growing up with hemophilia. He had support from family, friends, coaches, teammates, the treatment staff, and us. Yet he didn’t have anyone to talk with that really understood what it was like to have hemophilia. We tried our best to not treat Chris […]

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Infusing Love: I Get To Decide

I have an incredibly sweet and endearing child. I have been told on more than one occasion by his teachers that he has a sense for other children’s feelings, he knows when children are hurting, and he makes an effort to console them. I would love to take full credit for Logan’s sweet personality, but […]

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Infusing Love: No Promises

What is the last thing you say to your child before they leave the house? Maybe it is “I love you.” “Be careful” is always toward the top of my list. Ideally, I’d like to hear “Yes ma’am,” or “I will” in response. Do I ever hear that?! No! Nick’s favorite response is “No promises.” […]

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Infusing Love: To Go or Not To Go

Daffodils blooming, grass growing, longer days, and camp applications arriving in the mail mark the arrival of spring. We have a top-notch medical camp facility just forty-five minutes from our home. Our local Children’s Hospital hematology/oncology department sends staff to run the camp and take care of the kids. Camp is a week of acceptance. […]

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Infusing Love: Never Too Young To Advocate

For the past four years I have been participating in Hemophilia of South Carolina’s legislative days. During this annual event, I meet with our local representatives to share my experience of raising a child with a bleeding disorder and why it is important to support state programs that support our community. In prior years, I […]

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Infusing Love: We Keep on Ticking

My first national bleeding disorder conference was in New Orleans in 1998. I was overwhelmed at the over 2,000 individuals in attendance. My son was two and the enormity of hemophilia hit me hard when I saw men in wheelchairs, using walkers, and not moving their limbs with ease. What in the world was really in […]

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Infusing Love: Family Ties

I’m adopted. My birth mother was a spontaneous carrier and when she put me up for adoption she didn’t know about hemophilia. When I met her about ten years ago I found out that I have five younger siblings. Two of my brothers, Edwin and Steven, had hemophilia and died from HIV contracted in the […]

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Infusing Love: Overcoming Obstacles

Does anyone really like getting stuck with needles?  I don’t and I only gets labs drawn yearly and have my flu shot once a year.  When you have hemophilia and you have serious needle phobia, infusions don’t go well.  My son Chris, who is now 30, admits he still has severe needle phobia. Chris’s first […]

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Infusing Love: A Double Edged Sword

There are three words that I have a love-hate relationship with. The words are spoken with good intention and they aren’t fancy, SAT prep course worthy words. They are simple words, in a simple sentence, but there’s no simple answer to the question. “How’s Thomas doing?” It’s double-edged sword. It’s almost impossible for me to […]

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Infusing Love: Too Long to Wait

Our insurance provider changed at the beginning of this year.* We knew there would likely be some new hoops and apprehensively were preparing in the months prior to January 1st.  Thinking I was a savvy bleeding disorders mom getting ahead of a game, I knew this may require some extra work. So first thing on […]

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