Donate

News & Perspectives

FitFactor: ¡Consejos para tomar su rutina de ejercicios de vacaciones con usted!

August 31, 2017

  Si usted está escapando del clima de invierno para algunos R&R por la playa, o dirigirse a la casa de un familiar para ponerse al día, el viajar interrumpe su horario normal y puede hacer más difícil permanecer en la cima de su rutina de salud y ritmo de ejercicios. Hacer ejercicios es a […]

Infusing Love: Siblings Need History Lessons Too

August 30, 2017

  At HFA, we have a core tenant and motto of our organization. It is “Lest We Forget.” In my family’s view, raising a child with a bleeding disorder in today’s world means we have the responsibility of determining when and how we help our children to learn and understand the history of our community. […]

FitFactor: ¿Cómo se compara su lista de alimentos saludables con la de un nutricionista?

August 29, 2017

  ¿Cree usted que sus puntos de vista de lo que es saludable se alinean con las opiniones de los expertos? El New York Times publicó un interesante artículo hace unos meses sobre la percepción pública de lo que es “saludable” y cómo estos han cambiado con el tiempo. El estudio también destacó lo que […]

FitFactor: ¡Brindis para la buena salud … con té!

August 29, 2017

Ahora que el invierno está en pleno apogeo y el clima frío está sobre nosotros, puede ser fácil olvidarse de mantenerse hidratado. Sin embargo, sólo porque no sienta sed, no significa que su cuerpo tiene tanta agua como lo necesita. Una manera fácil de hidratarse (y calentarse) es beber té. No tiene azúcar añadido como […]

FDA Grants Priority Review to Genentech’s Emicizumab for Hemophilia A with Inhibitors

August 24, 2017

Note: The following is an edited version of a press release from Genentech. Read the press release from Genentech in it’s entirety here. Genentech, a member of the Roche Group, announced today that the U.S. Food and Drug Administration (FDA) has accepted the company’s Biologics License Application (BLA) and granted Priority Review for emicizumab prophylaxis (preventative) as […]

Infusing Love: A Back to School Shopping List

August 23, 2017

Buying school supplies prior to the beginning of each school year is a rite of passage. Until my kids got to high school, I was more than happy to take advantage of the school supply kits offered by our school. Even so, each year, I still have to make multiple trips to the store for […]

Octapharma USA Announces FDA Approval of NUWIQ New Product Strengths

August 23, 2017

Note: The following is an edited version of a press release from Octapharma USA. Read the press release from Octapharma USA in it’s entirety here. Octapharma USA today announced the U.S. Food and Drug Administration (FDA) has approved new product strengths for NUWIQ. The agency approved new single dose NUWIQ vial strengths of 2500, 3000 and 4000 International […]

Dear Addy: Step Therapy 2

August 21, 2017

Dear Addy, My insurance company is trying to make me go through step therapy to get access to the treatment product I need! Are they practicing medicine without a license and is it illegal? Sincerely, Feeling Pressured Dear Pressured, There is no clear legal answer to your question: is an insurer “practicing medicine without a […]

Infusing Love: Knowing How and When to Advocate

August 17, 2017

This past May our family was invited to attend the HFA Patient Fly-In to Washington, DC. The patients and caregivers were briefed on the talking points the evening before our scheduled meetings with our Senators and Representatives. As you know, health care is a hot topic and there were many talking points that needed to […]

Leading Bleeding Disorders Advocacy Organizations File Hemophilia Discrimination Complaint Against Wellmark Blue Cross and Blue Shield

August 15, 2017

– Complaint argues Wellmark’s withdrawal from the Iowa marketplace discriminates against protected health conditions under the ACA, including hemophilia, and its disclosure of a patient’s personal health information violates HIPAA WASHINGTON, Aug. 15, 2017 /PRNewswire-USNewswire/ — The National Hemophilia Foundation (NHF), Hemophilia Federation of America (HFA), and Hemophilia of Iowa (HOI) filed a complaint today with […]


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.