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CDC: Effect of Antiretroviral Therapy on Risk of Sexual Transmission of HIV Infection and Superinfection

Effect of Antiretroviral Therapy on Risk of Sexual Transmission of HIV Infection and Superinfection

Community members take action to self-advocate and petition FDA for change!

Theresa Toigo, RPh, MBA Director Office of Special Health Issues Food and Drug Administration (FDA) 5600 Fishers Lane HF-12, Room 9-49 Rockville, MD 20857 Theresa.Toigo@fda.hhs.gov   Dear Ms. Toigo,   We are people with Hemophilia and their supporters.   We recognize and appreciate the recent FDA publication of rules to clarify and expand the process […]

Mr. Wilkes goes to Washington

Nathan Wilkes, bleeding disorders community member,  has been invited to be a guest and sit in President Obama’s box during the Joint Session address.  Click here to read more.  To watch the Joint Session online tune into C-SPAN. The Wilkes’ story was featured on the White House website.  Their story illustrates the struggles families with expensive, rare […]

PRESS RELEASE: HFA WELCOMES NEW INTERN Amanda Winchester

FOR IMMEDIATE RELEASE: September 8, 2009 Washington, DC – Effective August 24, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Amanda Winchester, Intern.   Ms. Winchester’s primary responsibility is Helping Hands Coordinator. Helping Hands is a program for individuals with hemophilia and von Willebrand disease that provides emergent financial relief […]

PRESS RELEASE: HFA AWARDED CDC COOPERATIVE AGREEMENT FOR FIT FACTOR PROGRAM

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC, has been awarded a five-year cooperative agreement from the Centers for Disease Control and Prevention (CDC).  The award supports a program aimed at promoting physical activity and maintaining a healthy weight in individuals with hemophilia.  Proper […]

PRESS RELEASE: HFA AWARDED CDC COOPERATIVE AGREEMENT FOR BLOOD BROTHERHOOD PROGRAM

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC has been awarded funding for a cooperative agreement from the Centers for Disease Control and Prevention (CDC).  The award, totaling $289,000 per year, supports a program aimed at providing social support, health information and skills to […]

President Obama to address Congress September 9

On September 2, Speaker of the House Nancy Pelosi and Senate Majority Leader Harry Reid sent a letter to President Obama asking him to address a Joint Session of Congress.  On September 9, President Obama has a speech planned to lay out a more detailed health care reform plan before a joint session of Congress.  […]

Keeping Blood Transfusions Safe: FDA's Multi-layered Protections for Donated Blood

Vaccines, Blood & Biologics Keeping the United States blood supply the world’s safest is the ultimate responsibility of the nation’s more than 3,000 blood establishments, which collect and process 14 million units of whole blood donated by volunteers each year. The Food and Drug Administration, however, has the vital role of ensuring that the 3.5 […]

Farewell to Harvey as he heads to Hampton University

Harvey Gates, Jr. will be missed by the HFA Team.  Harvey spent the entire summer as an intern with HFA.  As a community member with hemophilia, Harvey realizes the importance of supporting community organizations.  Harvey completed multiple projects  and expressed enthusiasm while working for HFA this summer.  We wish him well as he heads back […]

Ablynx Initiates Phase II Clinical Trial for Alx-0081

  01 Sep 2009 Ablynx announced the initiation of a Phase II study for its anti-thrombotic Nanobody ALX-0081, a first-in-class Nanobody targeting von Willebrand Factor (vWF)GHENT, BELGIUM | September 1, 2009 | Ablynx [Euronext Brussels: ABLX] today announced the initiation of a Phase II study for its anti-thrombotic Nanobody ALX-0081, a first-in-class Nanobody targeting von […]

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