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Google News Alert for: hemophilia; bleeding disorders; blood clotting disorders

Google News Alert for: hemophilia; bleeding disorders; blood clotting disorders Scheiner earns scholarship Redding Pilot – Georgetown,CT,USA He was born with hemophilia, which impairs the body’s ability to control bleeding when a blood vessel is broken, and has to inject himself with clotting …

MASS INACTION: Placing the Massachusetts Model and Healthcare debate in a National context

In 2004, local community groups placed a constitutional amendment on the ballot creating a right to “healthcare for all.” Massachusetts election law requires constitutional amendments be approved by the voters and the legislature twice in two successive elections. Both the legislature and voters approved the measure in ’04. But in 2006, Governor Romney, at the […]

“Lies, Damned Lies and Statistics”

Coal miners use to rely on canaries to let them know when an unhealthy level of gases had built up. The canary would end up meeting an untimely demise, but more often than not, the accompanying miner would end up getting out safely. Over time the idea of the coal miner has become romanticized, complete […]

Remembering Senator Kennedy

Senator Edward “Ted” Kennedy, spent 9-terms (40-plus years) in the Senate.  He will be laid to rest on Saturday, August 29, 2009 at Arlington National Cemetery.  He was one of the most outspoken and effective members of the Senate.  He has been a long term proponent of health care reform and has a lengthy record […]

Even with health insurance, Texans in high-risk pool struggle

Marshall News Messenger – Marshall,TX,USA Christian Rodriguez, a 22-year-old college student in Spring who has hemophilia, a blood–clotting disorder, expects to reach the $2 million lifetime maximum …

Announcing the formation of a Hemophilia HIV/AIDS National Memorial

Announcing the formation of a Hemophilia HIV/AIDS National Memorial Release date:   Immediate                       contact:               MARY LOU MURPHY      781.444.8672 Terry MacNeil                         978.937.9857   A national memorial fund has been established to honor those who have lost their lives to Hepatitis C and HIV/AIDS as a result of tainted blood products in the […]

September IS Pain Awareness Month

Greetings: September is Pain Awareness Month and the American Pain Foundation invites you to join us in sounding the alarm in communities across the country about the barriers to accessing appropriate and effective pain management and the desperate need for better pain care. This year’s campaign, Conquering Pain Together, includes a first National Day of […]

TAKE A WALK ON THE WILD SIDE WITH GREAT LAKES HEMOPHILIA FOUNDATION

TAKE A WALK ON THE WILD SIDE WITH GREAT LAKES HEMOPHILIA FOUNDATION PitchEngine – Riverton,WY,USA Hemophilia affects more than 500 individuals in Wisconsin, while von Willebrand disease affects 1-2% of the population, or roughly 110700 Wisconsin …

Ablynx Will Announce Half-Year Results For 2009 With Webcast

Ablynx Will Announce Half-Year Results For 2009 With Webcast PharmaLive.com (press release) – Newtown,PA,USA ALX-0681, a subcutaneous formulation of the novel anti-thrombotic Nanobodies® that also selectively targets von Willebrand factor (vWF) has concluded Phase …

Focus on Data Mining

When a patient fills a prescription at a major pharmacy, a record of that prescription (minus the patient name) is sold to companies – so-called health information organizations – that pool information from multiple pharmacies. The bundled information is combined with individual physician identities purchased from the American Medical Association to create prescriber profiles (name, […]

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Assisting and Advocating for the Bleeding Disorders Community