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News & Perspectives

And last but not least…a Senate Finance Committee Health Care Reform document

September 16, 2009

The long awaited, Chairman’s mark from the Senate Finance Committee has finally been released.  The 223-page document, entitled America’s Healthy Future Act of 2009, underscores the lower costs, quality and affordable health coverage it will provide individuals and families.  Chairman Max Baucus declares “the Finance Committee carefully worked through the details of health care reform […]

Will annual premiums average a whopping $30,803 in 2019?

September 16, 2009

Drew E. Altman, Ph.D., President and Chief Executive Officer at the Kaiser Family Foundation highlighted the potential cost of premiums in 2019 in a recent “Pulling It Together” update.  Assuming that premium increases over the next ten years revert to the average of the last ten years, 8.7%, he asserts that premiums for a family […]

Comparative Effectiveness Research (CER) highlighted on the HFA Advocacy Page

September 16, 2009

CER has been a priority issue for the HFA.  The necessity to cut costs led Congress to address CER in the health care reform debate (although CER is not a “new” issue).  Our commitment to education and awareness prompted the need for a document that outlines a definition and summary of CER.   This document has […]

H.R. 3200, Health care reform legislation is in audio format

September 15, 2009

We Read…You Listen…We ALL Decide!  This is the mission statement from a group dedicated to creating audio versions of the lengthy health care reform bills in Congress.  Over 80 dedicated volunteers, many of them voice over actors, spent hours recording H.R. 3200.  The goal of hearthebill.org is to ensure everyone has an opportunity to familiarize […]

HFA wants YOU to share your VOICE!

September 15, 2009

Jim Dawdy and Alex Ell are highlighted in a video, HFA recently posted on the website’s homepage.  Their message:  Share your story!  Jim and Alex highlight the importance of visiting Congress, discussing the issues (lifetime caps), and their love for summer camps that support the bleeding disorders community across the country.  HFA appreciates the hard work […]

Alex & Jim

September 14, 2009

Medical Privacy 101

September 14, 2009

Over 4 million businesses, employers, government agencies, insurance companies, billing firms, and all their business associates that may include pharmacy benefits managers, and pharmaceutical companies as well as marketing firms and data miners.  Patient consent is no longer required to share health records, no matter how embarrassing or intensely personal the contents may be.  While […]

The long view…

September 9, 2009

Every so often it is important to take stock of where you are, where you have been and where you are going in politics. The national debate around healthcare reform has garnered a majority of the TV time and column inches in the newspaper. Events happening in DC right now are critical. Regardless of the […]

CDC: Effect of Antiretroviral Therapy on Risk of Sexual Transmission of HIV Infection and Superinfection

September 9, 2009

Effect of Antiretroviral Therapy on Risk of Sexual Transmission of HIV Infection and Superinfection

Community members take action to self-advocate and petition FDA for change!

September 9, 2009

Theresa Toigo, RPh, MBA Director Office of Special Health Issues Food and Drug Administration (FDA) 5600 Fishers Lane HF-12, Room 9-49 Rockville, MD 20857 Theresa.Toigo@fda.hhs.gov   Dear Ms. Toigo,   We are people with Hemophilia and their supporters.   We recognize and appreciate the recent FDA publication of rules to clarify and expand the process […]


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