Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Nathan Wilkes, bleeding disorders community member, has been invited to be a guest and sit in President Obama’s box during the Joint Session address. Click here to read more. To watch the Joint Session online tune into C-SPAN. The Wilkes’ story was featured on the White House website. Their story illustrates the struggles families with expensive, rare […]
FOR IMMEDIATE RELEASE: September 8, 2009 Washington, DC – Effective August 24, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Amanda Winchester, Intern. Ms. Winchester’s primary responsibility is Helping Hands Coordinator. Helping Hands is a program for individuals with hemophilia and von Willebrand disease that provides emergent financial relief […]
FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC, has been awarded a five-year cooperative agreement from the Centers for Disease Control and Prevention (CDC). The award supports a program aimed at promoting physical activity and maintaining a healthy weight in individuals with hemophilia. Proper […]
FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC has been awarded funding for a cooperative agreement from the Centers for Disease Control and Prevention (CDC). The award, totaling $289,000 per year, supports a program aimed at providing social support, health information and skills to […]
On September 2, Speaker of the House Nancy Pelosi and Senate Majority Leader Harry Reid sent a letter to President Obama asking him to address a Joint Session of Congress. On September 9, President Obama has a speech planned to lay out a more detailed health care reform plan before a joint session of Congress. […]
Vaccines, Blood & Biologics Keeping the United States blood supply the world’s safest is the ultimate responsibility of the nation’s more than 3,000 blood establishments, which collect and process 14 million units of whole blood donated by volunteers each year. The Food and Drug Administration, however, has the vital role of ensuring that the 3.5 […]
Harvey Gates, Jr. will be missed by the HFA Team. Harvey spent the entire summer as an intern with HFA. As a community member with hemophilia, Harvey realizes the importance of supporting community organizations. Harvey completed multiple projects and expressed enthusiasm while working for HFA this summer. We wish him well as he heads back […]
01 Sep 2009 Ablynx announced the initiation of a Phase II study for its anti-thrombotic Nanobody ALX-0081, a first-in-class Nanobody targeting von Willebrand Factor (vWF)GHENT, BELGIUM | September 1, 2009 | Ablynx [Euronext Brussels: ABLX] today announced the initiation of a Phase II study for its anti-thrombotic Nanobody ALX-0081, a first-in-class Nanobody targeting von […]
September is here and Congress is back in session next week. There are still many unanswered health reform questions. Last week, the Kaiser Health Network reported on Senator Chuck Grassley’s view of next steps; “If town meetings are going to mean anything, if democracy is going to mean anything, then you listen to your people […]
Young leaders are instrumental to the future of the bleeding disorders community. Students and young adults have a VOICE and an important story to tell. Furthermore, they want to be involved and advocate for the bleeding disorders community. In response to those needs, the HFA Team has launched web space on the HFA website to […]
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