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Have you actually read H.R. 3200?

Yesterday I received an email from a member of the bleeding disorders community.  The email began with “this is NOT a health care plan but a system to further invade your life/privacy, take your money, ration health care, control salaries of medical professionals and prescribe your death plan”.  The email highlighted sections of America’s Affordable Health […]

Notes from Philadelphia…

I had the distinct honor of representing HFA at the National Conference of State Legislators 2009 Summit in Philadelphia last week. The National Conference of State Legislatures is a bipartisan organization that serves the legislators and staffs of the nation’s 50 states, its commonwealths and territories. For five days, 5,000 state legislators and another 5,000 staff people […]

Healthcare Federalism

Watching the goings on in Congress around the various healthcare proposals, one might think that the day after Congress passes a reform package we all will immediately have insurance coverage. A quick primer in legislative process might come in handy here. Congress is charged with creating the rules. This is going on now. The various […]

Bayer HealthCare Launches Hemophilia Self-Infusion Training Program

News Release   Innovative BayCuff™ Program Empowers Young Members of Hemophilia A Community to Take Control of Their Treatment WAYNE, NJ, July 9, 2009 – Today, Bayer HealthCare Pharmaceuticals launched the BayCuff™ self-infusion training program, an educational initiative designed to make infusion of recombinant factor VIII easier for both patients with hemophilia A and for their […]

FDA Update: U.S. Department of Health and Human Services

Guidance for Industry: Nucleic Acid Testing (NAT) to Reduce the Possible Risk of Parvovirus B19 Transmission by Plasma-Derived Products: http://www.fda.gov/BiologicsBloodVaccines/GuidanceComplianceRegulatoryInformation/Guidances/default.htm

Kimberly’s “wild” town-hall meeting with Rep. Sensenbrenner

“Obama’s health plan will make the current situation worse”.  Rep. Sensenbrenner’s declaration set the tone for a “very charged up” crowd at recent town-hall meeting attended by HFA’s very own Executive Director, Kimberly Haugstad.  Many attendees in the standing room only meeting expressed significant frustration with the member who represents Wisconsin’s 5th-district.  Obama supporters expressed […]

Check to see how the House Tri-Committee health reform bill will impact where you live

The House Energy and Commerce Committee analyzed the impact that America’s Affordable Health Choices Act of 2009 (H.R. 3200) would have on each member’s district.  To learn more about the impact of the legislation on small businesses, seniors in Medicare, health care providers, and the uninsured, please click DISTRICT-BY-DISTRICT IMPACT.

Von Willebrand Test

Google Web Alert for: von Willibrand Von Willebrand Test Tests may need to be done more than once because these levels may rise and fall over time in an individual The most common treatment for von Willebrand …

What should be the deadline?

In a press conference earlier this week, President Obama said “if there is not a deadline in Washington, nothing happens”.  Seven members of the Blue Dog Coalition expressed concerns over the cost and the need to pass “deficit neutral” health reform legislation.  Representative Mike Ross, Chairman of the Blue Dog Health Care Task Force feels […]

Press Release: HFA Adds Voices Campaign Project Coordinator to National Team

FOR IMMEDIATE RELEASE:                                                                         July 23, 2009 HFA Adds Voices Campaign Project Coordinator to National Team Washington, DC – Effective July 6, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Ms. Katie Whittle from Seattle, Washington as its Voices Campaign Coordinator.  “We are delighted to have Katie on board.  Her […]

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Assisting and Advocating for the Bleeding Disorders Community