News & Perspectives

Community Members Nathan & Sonji Wilkes, live on MSNBC

August 20, 2009

Check out the video of community members Nathan and Sonji Wilkes, interviewed by Dr.  Nancy on MSNBC today!

Ablynx Announces Positive Phase I Results for Subcutaneous Administration of it’s Ant-thrombotic NanobodyR (ALX-0681)

August 19, 2009

GHENT, Belgium, 18 August 2009 – Ablynx [Euronext Brussels: ABLX] today announced the positive results from its double-blind, randomized, placebo-controlled, single and multiple dose Phase I study with ALX-0681, a subcutaneous formulation of its novel anti-thrombotic Nanobody® that selectively targets von Willebrand factor (vWF). The positive Phase I data support the progression of ALX-0681 towards […]

Francis S. Collins sworn in as NIH Director

August 18, 2009

Francis S. Collins, M.D., Ph.D., NIH Director Francis S. Collins, M.D., Ph.D., was officially sworn in on Monday, August 17, 2009 as the 16th director of the National Institutes of Health (NIH). Dr. Collins was nominated by President Barack Obama on July 8, and was unanimously confirmed by the U.S. Senate on August 7. Dr. […]

Why Palliative Care matters…

August 18, 2009

In 2008, New York took an active approach to increasing the use of palliative care by educating health care professionals about this form of care and its potential benefits passing Senate Bill 2108. SB 2108 provided $4.5 million in grants from the state’s public health budget to recruit faculty for and develop programs in health […]

2009 Meeting Materials of the Blood Products Advisory Committee

August 18, 2009

2009 Meeting Materials of the Blood Products Advisory Committee  Transcripts of the 7/20-21/2009 Meeting, Posted: 8/18/2009

Read Nathan Wilkes’ remarks from Grand Junction, CO town hall meeting

August 17, 2009

Nathan Wilkes and his family have truly inspired the community to share their stories and let their VOICES be heard.  To read Nathan’s entire introduction on August 15, 2009 CLICK HERE.

Nathan Wilkes introduces President OBAMA at town hall meeting

August 15, 2009

Nathan Wilkes, a bleeding disorders community member,  had the opportunity to introduce President OBAMA today at a townhall meeting in Grand Junction, CO.  Before the introduction, he highlighted how his 6-year old son with hemophilia nearly reached the lifetime insurance cap.  He emphasized his family’s concerns with health insurance coverage.  HFA is excited Nathan had the opportunity to represent the […]

HFA applauds Paterson, NY legislature effort to address the coverage needs of dependent children

August 12, 2009

Last week, New York Gov. David A. Paterson has signed into law a series of health reform efforts, including: extending coverage to those who are uninsured and 29 or younger and increasing the age of a dependent to 29. In signing the bills, Paterson said “the reforms will make health insurance more affordable for New […]

Town hall meeting frenzy

August 7, 2009

Town hall meetings across the United States have gotten out of control.  Fights, yelling, tombstones with names of Congress members, and vulgar posters are the norm.  Members of Congress are in fear of their lives.  Some have opted for “tele-town hall meetings” instead. What happened to civil meetings with dialogue between Congress members and their […]

The Health and Human Services Secretary discusses health insurance reform on 8-7-09

August 6, 2009

HHS Secretary Kathleen Sebelius and top HHS officials plan to discuss reform of the health insurance system Friday at 1pm.  To watch the webcast, click here.

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