Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Check out the video of community members Nathan and Sonji Wilkes, interviewed by Dr. Nancy on MSNBC today!
GHENT, Belgium, 18 August 2009 – Ablynx [Euronext Brussels: ABLX] today announced the positive results from its double-blind, randomized, placebo-controlled, single and multiple dose Phase I study with ALX-0681, a subcutaneous formulation of its novel anti-thrombotic Nanobody® that selectively targets von Willebrand factor (vWF). The positive Phase I data support the progression of ALX-0681 towards […]
Francis S. Collins, M.D., Ph.D., NIH Director Francis S. Collins, M.D., Ph.D., was officially sworn in on Monday, August 17, 2009 as the 16th director of the National Institutes of Health (NIH). Dr. Collins was nominated by President Barack Obama on July 8, and was unanimously confirmed by the U.S. Senate on August 7. Dr. […]
In 2008, New York took an active approach to increasing the use of palliative care by educating health care professionals about this form of care and its potential benefits passing Senate Bill 2108. SB 2108 provided $4.5 million in grants from the state’s public health budget to recruit faculty for and develop programs in health […]
2009 Meeting Materials of the Blood Products Advisory Committee Transcripts of the 7/20-21/2009 Meeting, Posted: 8/18/2009
Nathan Wilkes and his family have truly inspired the community to share their stories and let their VOICES be heard. To read Nathan’s entire introduction on August 15, 2009 CLICK HERE.
Nathan Wilkes, a bleeding disorders community member, had the opportunity to introduce President OBAMA today at a townhall meeting in Grand Junction, CO. Before the introduction, he highlighted how his 6-year old son with hemophilia nearly reached the lifetime insurance cap. He emphasized his family’s concerns with health insurance coverage. HFA is excited Nathan had the opportunity to represent the […]
Last week, New York Gov. David A. Paterson has signed into law a series of health reform efforts, including: extending coverage to those who are uninsured and 29 or younger and increasing the age of a dependent to 29. In signing the bills, Paterson said “the reforms will make health insurance more affordable for New […]
Town hall meetings across the United States have gotten out of control. Fights, yelling, tombstones with names of Congress members, and vulgar posters are the norm. Members of Congress are in fear of their lives. Some have opted for “tele-town hall meetings” instead. What happened to civil meetings with dialogue between Congress members and their […]
HHS Secretary Kathleen Sebelius and top HHS officials plan to discuss reform of the health insurance system Friday at 1pm. To watch the webcast, click here.
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