Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Anyone who knows me or has read any of my previous blogs, knows that our household basically revolves around baseball. If the weather is nice and I’m not at work, I’m at the baseball field. Sometimes it makes life a little crazy, but it makes Nick really happy and that is what’s most important. My […]
As a mom, the single hardest thing for me about hemophilia hasn’t been the unpredictability, or the pain, or the insurance, or the infusions. The thing I struggle with and lose the most sleep over are my “unaffected” girls. I’ve got this hemophilia thing down – recognize the bleed, treat it. Rinse, repeat. But […]
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