Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Do you ever wish there was someone who truly understood what you were going through? Do you wish you could surround yourself with a support network of other women in your local area, but can’t find them? Do you wish you had more support from women in the bleeding disorders community? In 2013, a group […]
Dear Addy, I’m a woman who bruises easily and has a heavy menstrual cycle. Does this mean I have a bleeding disorder? Signed, Possible Female Bleeder Dear Possible Bleeder, This is a great question and one that HFA is hearing more frequently from women. Bleeding disorders can be dangerous if they are not treated. Women […]
If I had a nickel for every time someone asked me whether I was sure my daughter had hemophilia, well I wouldn’t be rich, but I would certainly have a heavy load of change tearing a hole through my pocket. Before my children were diagnosed, my only exposure to hemophilia was in my college genetics […]
While some women experience bleeding symptoms monthly or even more frequently, other women may go years before bleeding issues are recognized, making a diagnosis even more difficult. Jennifer was a hemophilia carrier for 33 years before she had her first bleed. She shares the emotional and physical pain she endured as she struggled to get […]
On Thursday, January 22, 2015, the CDC hosted a webinar to help women with a bleeding disorder recognize the signs and symptoms of reproductive issues. The webinar was facilitated by Andra H. James, MD. Dr. James is Consulting Professor of Obstetrics and Gynecology at Duke University, where she also has an appointment in the Division of Hematology. Dr. […]
A carrier of the hemophilia gene is a female who has a genetic mutation on one of her X chromosomes. About 1/3 of carriers experience bleeding problems and are often referred to as symptomatic carriers. By definition, if a woman has clotting factor levels less than 50%, she has mild hemophilia. Ashley and Sarah are […]
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