Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
When my son, Julian, began middle school, I kicked his hemophilia education into high gear. He already knew the basics, but it was now time for him to learn how to call and order his factor, find the Hemophilia Treatment Center closest to him when on vacation, and to understand the importance of keeping the […]
I am finding myself in an interesting point in my life. My oldest son is home for the summer and has finished up his first year of college. My youngest son is about to start his senior year of high school. So I’ve successfully launched one bird out of the nest and hope I can […]
One of the ways I’ve learned the most about raising a child with hemophilia is by talking with our community’s “Blood Brothers,” the guys who have grown up and moved away from home, whether they be in college or have grandchildren of their own. These men are able to give it to me straight about […]
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