Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
My 10-year-old daughter, Natalie, has been officially DNA tested and is a carrier of the hemophilia gene. This wasn’t particularly surprising or upsetting to my husband or myself, or even Natalie. For a child, she has a remarkably good grasp on the genetics of hemophilia and she understands what it means to be a carrier. […]
If I had a nickel for every time someone asked me whether I was sure my daughter had hemophilia, well I wouldn’t be rich, but I would certainly have a heavy load of change tearing a hole through my pocket. Before my children were diagnosed, my only exposure to hemophilia was in my college genetics […]
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