Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
I am exhausted. So very exhausted. I am pleading to myself that there isn’t something wrong; that the whimpers and small cries I hear as he sleeps aren’t there and that it is from sleep deprivation. I am drifting in and out of sleep on the baby glider that still graces his room even though […]
Dear Addy, We went out of town for vacation and I had to take my son to the ER for a bleed due. Unfortunately, none of the doctors were familiar with hemophilia. I knew more than they did. Instead of comforting my son, I spent my time educating doctors. Is there something I can do […]
Being prepared took on a new meaning after having Max. It’s frightening and frustrating to know your child is hurt, but the key is to remain calm. Whether you’re on a trip or stranded in your own home, it never solves anything to panic. For me, the hardest part of adjusting to hemophilia was what […]
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