Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
This post is written as a special shout-out to my husband; a hemo dad, and all the other caregivers who have patience just like my husband Shane. I’m pretty lucky to have a husband who is very involved in Maddox’s infusions. My husband, Shane, gives Maddox his infusions three times a week. As a full-time […]
Being a father has been the most challenging and most rewarding task God has ever asked of me. I would do it all over again in a heartbeat. I have found the relationship between my daughter, Bethany, and me to be such paradox at times, but now that we’re both adults, I can’t express how […]
On my husband’s Twitter profile, he describes himself as “Father, Entrepreneur, Righteous Dude, Caped Crusader Fighting the Evil Private Health Insurance Empire.” I’d testify those all true assessments of him. He’s a pretty good guy. I think most fathers in the bleeding disorders community are. They fight for justice for their kids just as hard […]
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